Opportunity ID: 311756

General Information

Document Type: Grants Notice
Funding Opportunity Number: RFA-DP-19-003
Funding Opportunity Title: Epidemiology of Lupus: Longitudinal Studies in Population-Based Cohorts
Opportunity Category: Discretionary
Opportunity Category Explanation:
Funding Instrument Type: Cooperative Agreement
Category of Funding Activity: Health
Category Explanation:
Expected Number of Awards: 4
Assistance Listings: 93.283 — Centers for Disease Control and Prevention Investigations and Technical Assistance
Cost Sharing or Matching Requirement: No
Version: Synopsis 5
Posted Date: Jan 04, 2019
Last Updated Date: Feb 27, 2019
Original Closing Date for Applications: Mar 08, 2019 Electronically submitted applications must be submitted no later than 5:00 p.m., ET, on the listed application due date.
Current Closing Date for Applications: Mar 08, 2019 Electronically submitted applications must be submitted no later than 5:00 p.m., ET, on the listed application due date.
Archive Date: Apr 07, 2019
Estimated Total Program Funding: $10,500,000
Award Ceiling: $1,000,000
Award Floor: $700,000

Eligibility

Eligible Applicants: Public housing authorities/Indian housing authorities
County governments
City or township governments
Small businesses
Native American tribal governments (Federally recognized)
Native American tribal organizations (other than Federally recognized tribal governments)
Others (see text field entitled “Additional Information on Eligibility” for clarification)
Special district governments
Independent school districts
Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled “Additional Information on Eligibility”
Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education
Private institutions of higher education
State governments
For profit organizations other than small businesses
Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education
Public and State controlled institutions of higher education
Additional Information on Eligibility: Eligibility applicants must meet the following criteria:Component A: (Longitudinal Studies of Lupus in Population-based cohorts of Adults with Lupus: 3 Year Followup):Criteria 1. Applicant must have an existing U.S. population-based cohort with > 400 adults ages 18 and greater at baseline, with SLE and/or skin lupus. Criteria 2. Applicant must have at least 4 years of followup at time of application for the four content areas listed in the Approach section above (natural history, treatment, health care access, and disparities).Component B: (A Pediatric Lupus Registry with Longitudinal Followup):Criteria 1. Applicant must have access to an existing cohort with 200+ diagnosed U.S. lupus patients ages 0-17 years at baseline in an area that is geographically population-based.If your application is incomplete or non-responsive to the special eligibility requirements listed in this section, it will not enter into the review process.

Additional Information

Agency Name: Centers for Disease Control and Prevention – ERA
Description: This NOFO is intended to support research on lupus through a 2-component cooperative agreement:Component A (Longitudinal Studies in Population-based Cohorts of Adults with Lupus: 3 Year Followup):This is a longitudinal followup study designed to support an established, US-based, population-based cohort of adults age 18 and older with diagnosed lupus (systemic lupus erythematosus {SLE} and skin lupus) that includes followup data collected at least once since 2015. The intent of this study is to conduct data collection, building upon the cohort and initial followup activities. This data collection should include four content areas:The natural history (e.g., severity, morbidity, mortality, disability, comorbidity, work interference, etc.) of cohort members, andTreatment (e.g., medications, therapy, self-management, etc.) of lupus including the treatment of chronic pain and opioid use, andHealth care access and gaps that adults with lupus experience, andDisparities (e.g., age, race/ethnicity, sex) and other factors associated with lupus outcomes.Component B: (A Pediatric Lupus Registry with Longitudinal Follow up):This is a project that will support an existing US-based registry of children age 0-17 years with diagnosed lupus (SLE and skin lupus). The intent of this study is to gather baseline data for children age 0-17 years and follow up data for this cohort for three additional years. The baseline and follow up data should include these 4 content areas:The natural history (e.g., severity, morbidity, mortality, disability, comorbidity, work interference, etc.) of cohort members, andTreatment (e.g., medications, therapy, self-management, etc.) of lupus including the treatment of chronic pain and opioid use, andHealth care access and gaps that children with lupus experience, andDisparities (e.g., age, race/ethnicity, sex) and other factors associated with lupus outcomes.
Link to Additional Information:
Grantor Contact Information: If you have difficulty accessing the full announcement electronically, please contact:

Jessie Hood
jvr4@cdc.gov
Email:jvr4@cdc.gov

Version History

Version Modification Description Updated Date
Updated the application package for DD/DP CIO. Feb 27, 2019
Feb 27, 2019
Updated this application package for this NOFO. Feb 25, 2019
Updated the application package for this NOFO. Jan 08, 2019
Jan 08, 2019

DISPLAYING: Synopsis 5

General Information

Document Type: Grants Notice
Funding Opportunity Number: RFA-DP-19-003
Funding Opportunity Title: Epidemiology of Lupus: Longitudinal Studies in Population-Based Cohorts
Opportunity Category: Discretionary
Opportunity Category Explanation:
Funding Instrument Type: Cooperative Agreement
Category of Funding Activity: Health
Category Explanation:
Expected Number of Awards: 4
Assistance Listings: 93.283 — Centers for Disease Control and Prevention Investigations and Technical Assistance
Cost Sharing or Matching Requirement: No
Version: Synopsis 5
Posted Date: Jan 04, 2019
Last Updated Date: Feb 27, 2019
Original Closing Date for Applications: Mar 08, 2019 Electronically submitted applications must be submitted no later than 5:00 p.m., ET, on the listed application due date.
Current Closing Date for Applications: Mar 08, 2019 Electronically submitted applications must be submitted no later than 5:00 p.m., ET, on the listed application due date.
Archive Date: Apr 07, 2019
Estimated Total Program Funding: $10,500,000
Award Ceiling: $1,000,000
Award Floor: $700,000

Eligibility

Eligible Applicants: Public housing authorities/Indian housing authorities
County governments
City or township governments
Small businesses
Native American tribal governments (Federally recognized)
Native American tribal organizations (other than Federally recognized tribal governments)
Others (see text field entitled “Additional Information on Eligibility” for clarification)
Special district governments
Independent school districts
Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled “Additional Information on Eligibility”
Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education
Private institutions of higher education
State governments
For profit organizations other than small businesses
Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education
Public and State controlled institutions of higher education
Additional Information on Eligibility: Eligibility applicants must meet the following criteria:Component A: (Longitudinal Studies of Lupus in Population-based cohorts of Adults with Lupus: 3 Year Followup):Criteria 1. Applicant must have an existing U.S. population-based cohort with > 400 adults ages 18 and greater at baseline, with SLE and/or skin lupus. Criteria 2. Applicant must have at least 4 years of followup at time of application for the four content areas listed in the Approach section above (natural history, treatment, health care access, and disparities).Component B: (A Pediatric Lupus Registry with Longitudinal Followup):Criteria 1. Applicant must have access to an existing cohort with 200+ diagnosed U.S. lupus patients ages 0-17 years at baseline in an area that is geographically population-based.If your application is incomplete or non-responsive to the special eligibility requirements listed in this section, it will not enter into the review process.

Additional Information

Agency Name: Centers for Disease Control and Prevention – ERA
Description: This NOFO is intended to support research on lupus through a 2-component cooperative agreement:Component A (Longitudinal Studies in Population-based Cohorts of Adults with Lupus: 3 Year Followup):This is a longitudinal followup study designed to support an established, US-based, population-based cohort of adults age 18 and older with diagnosed lupus (systemic lupus erythematosus {SLE} and skin lupus) that includes followup data collected at least once since 2015. The intent of this study is to conduct data collection, building upon the cohort and initial followup activities. This data collection should include four content areas:The natural history (e.g., severity, morbidity, mortality, disability, comorbidity, work interference, etc.) of cohort members, andTreatment (e.g., medications, therapy, self-management, etc.) of lupus including the treatment of chronic pain and opioid use, andHealth care access and gaps that adults with lupus experience, andDisparities (e.g., age, race/ethnicity, sex) and other factors associated with lupus outcomes.Component B: (A Pediatric Lupus Registry with Longitudinal Follow up):This is a project that will support an existing US-based registry of children age 0-17 years with diagnosed lupus (SLE and skin lupus). The intent of this study is to gather baseline data for children age 0-17 years and follow up data for this cohort for three additional years. The baseline and follow up data should include these 4 content areas:The natural history (e.g., severity, morbidity, mortality, disability, comorbidity, work interference, etc.) of cohort members, andTreatment (e.g., medications, therapy, self-management, etc.) of lupus including the treatment of chronic pain and opioid use, andHealth care access and gaps that children with lupus experience, andDisparities (e.g., age, race/ethnicity, sex) and other factors associated with lupus outcomes.
Link to Additional Information:
Grantor Contact Information: If you have difficulty accessing the full announcement electronically, please contact:

Jessie Hood
jvr4@cdc.gov
Email:jvr4@cdc.gov

DISPLAYING: Synopsis 4

General Information

Document Type: Grants Notice
Funding Opportunity Number: RFA-DP-19-003
Funding Opportunity Title: Epidemiology of Lupus: Longitudinal Studies in Population-Based Cohorts
Opportunity Category: Discretionary
Opportunity Category Explanation:
Funding Instrument Type: Cooperative Agreement
Category of Funding Activity: Health
Category Explanation:
Expected Number of Awards: 4
Assistance Listings: 93.283 — Centers for Disease Control and Prevention Investigations and Technical Assistance
Cost Sharing or Matching Requirement: No
Version: Synopsis 4
Posted Date: Feb 27, 2019
Last Updated Date: Feb 25, 2019
Original Closing Date for Applications:
Current Closing Date for Applications: Mar 08, 2019 Electronically submitted applications must be submitted no later than 5:00 p.m., ET, on the listed application due date.
Archive Date: Apr 07, 2019
Estimated Total Program Funding: $10,500,000
Award Ceiling: $1,000,000
Award Floor: $700,000

Eligibility

Eligible Applicants: Native American tribal governments (Federally recognized)
Small businesses
Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education
Special district governments
Public and State controlled institutions of higher education
Native American tribal organizations (other than Federally recognized tribal governments)
Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education
City or township governments
Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled “Additional Information on Eligibility”
County governments
Independent school districts
For profit organizations other than small businesses
Others (see text field entitled “Additional Information on Eligibility” for clarification)
Public housing authorities/Indian housing authorities
Private institutions of higher education
State governments
Additional Information on Eligibility: Eligibility applicants must meet the following criteria:
Component A: (Longitudinal Studies of Lupus in Population-based cohorts of Adults with Lupus: 3 Year Followup):
Criteria 1. Applicant must have an existing U.S. population-based cohort with > 400 adults ages 18 and greater at baseline, with SLE and/or skin lupus.
Criteria 2. Applicant must have at least 4 years of followup at time of application for the four content areas listed in the Approach section above (natural history, treatment, health care access, and disparities).
Component B: (A Pediatric Lupus Registry with Longitudinal Followup):
Criteria 1. Applicant must have access to an existing cohort with 200+ diagnosed U.S. lupus patients ages 0-17 years at baseline in an area that is geographically population-based.
If your application is incomplete or non-responsive to the special eligibility requirements listed in this section, it will not enter into the review process.

Additional Information

Agency Name: Centers for Disease Control and Prevention – ERA
Description: This NOFO is intended to support research on lupus through a 2-component cooperative agreement:
Component A (Longitudinal Studies in Population-based Cohorts of Adults with Lupus: 3 Year Followup):
This is a longitudinal followup study designed to support an established, US-based, population-based cohort of adults age 18 and older with diagnosed lupus (systemic lupus erythematosus {SLE} and skin lupus) that includes followup data collected at least once since 2015. The intent of this study is to conduct data collection, building upon the cohort and initial followup activities. This data collection should include four content areas:
The natural history (e.g., severity, morbidity, mortality, disability, comorbidity, work interference, etc.) of cohort members, and

Treatment (e.g., medications, therapy, self-management, etc.) of lupus including the treatment of chronic pain and opioid use, and
Health care access and gaps that adults with lupus experience, and
Disparities (e.g., age, race/ethnicity, sex) and other factors associated with lupus outcomes.

Component B: (A Pediatric Lupus Registry with Longitudinal Follow up):
This is a project that will support an existing US-based registry of children age 0-17 years with diagnosed lupus (SLE and skin lupus). The intent of this study is to gather baseline data for children age 0-17 years and follow up data for this cohort for three additional years. The baseline and follow up data should include these 4 content areas:
The natural history (e.g., severity, morbidity, mortality, disability, comorbidity, work interference, etc.) of cohort members, and

Treatment (e.g., medications, therapy, self-management, etc.) of lupus including the treatment of chronic pain and opioid use, and
Health care access and gaps that children with lupus experience, and
Disparities (e.g., age, race/ethnicity, sex) and other factors associated with lupus outcomes.

Link to Additional Information:
Grantor Contact Information: If you have difficulty accessing the full announcement electronically, please contact:

Jessie Hood
jvr4@cdc.gov
Email:jvr4@cdc.gov

DISPLAYING: Synopsis 3

General Information

Document Type: Grants Notice
Funding Opportunity Number: RFA-DP-19-003
Funding Opportunity Title: Epidemiology of Lupus: Longitudinal Studies in Population-Based Cohorts
Opportunity Category: Discretionary
Opportunity Category Explanation:
Funding Instrument Type: Cooperative Agreement
Category of Funding Activity: Health
Category Explanation:
Expected Number of Awards: 4
Assistance Listings: 93.283 — Centers for Disease Control and Prevention Investigations and Technical Assistance
Cost Sharing or Matching Requirement: No
Version: Synopsis 3
Posted Date: Feb 25, 2019
Last Updated Date: Jan 08, 2019
Original Closing Date for Applications:
Current Closing Date for Applications: Mar 08, 2019 Electronically submitted applications must be submitted no later than 5:00 p.m., ET, on the listed application due date.
Archive Date: Apr 07, 2019
Estimated Total Program Funding: $10,500,000
Award Ceiling: $1,000,000
Award Floor: $700,000

Eligibility

Eligible Applicants: Native American tribal governments (Federally recognized)
Small businesses
Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education
Special district governments
Public and State controlled institutions of higher education
Native American tribal organizations (other than Federally recognized tribal governments)
Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education
City or township governments
County governments
Independent school districts
Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled “Additional Information on Eligibility”
For profit organizations other than small businesses
Others (see text field entitled “Additional Information on Eligibility” for clarification)
Public housing authorities/Indian housing authorities
Private institutions of higher education
State governments
Additional Information on Eligibility: Eligibility applicants must meet the following criteria:Component A: (Longitudinal Studies of Lupus in Population-based cohorts of Adults with Lupus: 3 Year Followup):Criteria 1. Applicant must have an existing U.S. population-based cohort with > 400 adults ages 18 and greater at baseline, with SLE and/or skin lupus. Criteria 2. Applicant must have at least 4 years of followup at time of application for the four content areas listed in the Approach section above (natural history, treatment, health care access, and disparities).Component B: (A Pediatric Lupus Registry with Longitudinal Followup):Criteria 1. Applicant must have access to an existing cohort with 200+ diagnosed U.S. lupus patients ages 0-17 years at baseline in an area that is geographically population-based.If your application is incomplete or non-responsive to the special eligibility requirements listed in this section, it will not enter into the review process.

Additional Information

Agency Name: Centers for Disease Control and Prevention – ERA
Description: This NOFO is intended to support research on lupus through a 2-component cooperative agreement:Component A (Longitudinal Studies in Population-based Cohorts of Adults with Lupus: 3 Year Followup):This is a longitudinal followup study designed to support an established, US-based, population-based cohort of adults age 18 and older with diagnosed lupus (systemic lupus erythematosus {SLE} and skin lupus) that includes followup data collected at least once since 2015. The intent of this study is to conduct data collection, building upon the cohort and initial followup activities. This data collection should include four content areas:The natural history (e.g., severity, morbidity, mortality, disability, comorbidity, work interference, etc.) of cohort members, andTreatment (e.g., medications, therapy, self-management, etc.) of lupus including the treatment of chronic pain and opioid use, andHealth care access and gaps that adults with lupus experience, andDisparities (e.g., age, race/ethnicity, sex) and other factors associated with lupus outcomes.Component B: (A Pediatric Lupus Registry with Longitudinal Follow up):This is a project that will support an existing US-based registry of children age 0-17 years with diagnosed lupus (SLE and skin lupus). The intent of this study is to gather baseline data for children age 0-17 years and follow up data for this cohort for three additional years. The baseline and follow up data should include these 4 content areas:The natural history (e.g., severity, morbidity, mortality, disability, comorbidity, work interference, etc.) of cohort members, andTreatment (e.g., medications, therapy, self-management, etc.) of lupus including the treatment of chronic pain and opioid use, andHealth care access and gaps that children with lupus experience, andDisparities (e.g., age, race/ethnicity, sex) and other factors associated with lupus outcomes.
Link to Additional Information:
Grantor Contact Information: If you have difficulty accessing the full announcement electronically, please contact:

Jessie Hood
jvr4@cdc.gov
Email:jvr4@cdc.gov

DISPLAYING: Synopsis 2

General Information

Document Type: Grants Notice
Funding Opportunity Number: RFA-DP-19-003
Funding Opportunity Title: Epidemiology of Lupus: Longitudinal Studies in Population-Based Cohorts
Opportunity Category: Discretionary
Opportunity Category Explanation:
Funding Instrument Type: Cooperative Agreement
Category of Funding Activity: Health
Category Explanation:
Expected Number of Awards: 4
Assistance Listings: 93.283 — Centers for Disease Control and Prevention Investigations and Technical Assistance
Cost Sharing or Matching Requirement: No
Version: Synopsis 2
Posted Date: Jan 08, 2019
Last Updated Date: Jan 08, 2019
Original Closing Date for Applications:
Current Closing Date for Applications: Mar 08, 2019 Electronically submitted applications must be submitted no later than 5:00 p.m., ET, on the listed application due date.
Archive Date: Apr 07, 2019
Estimated Total Program Funding: $10,500,000
Award Ceiling: $1,000,000
Award Floor: $700,000

Eligibility

Eligible Applicants: Native American tribal governments (Federally recognized)
Small businesses
Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education
Special district governments
Public and State controlled institutions of higher education
Native American tribal organizations (other than Federally recognized tribal governments)
Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education
City or township governments
County governments
Independent school districts
Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled “Additional Information on Eligibility”
For profit organizations other than small businesses
Others (see text field entitled “Additional Information on Eligibility” for clarification)
Public housing authorities/Indian housing authorities
Private institutions of higher education
State governments
Additional Information on Eligibility: Eligibility applicants must meet the following criteria:Component A: (Longitudinal Studies of Lupus in Population-based cohorts of Adults with Lupus: 3 Year Followup):Criteria 1. Applicant must have an existing U.S. population-based cohort with > 400 adults ages 18 and greater at baseline, with SLE and/or skin lupus. Criteria 2. Applicant must have at least 4 years of followup at time of application for the four content areas listed in the Approach section above (natural history, treatment, health care access, and disparities).Component B: (A Pediatric Lupus Registry with Longitudinal Followup):Criteria 1. Applicant must have access to an existing cohort with 200+ diagnosed U.S. lupus patients ages 0-17 years at baseline in an area that is geographically population-based.If your application is incomplete or non-responsive to the special eligibility requirements listed in this section, it will not enter into the review process.

Additional Information

Agency Name: Centers for Disease Control and Prevention – ERA
Description: This NOFO is intended to support research on lupus through a 2-component cooperative agreement:Component A (Longitudinal Studies in Population-based Cohorts of Adults with Lupus: 3 Year Followup):This is a longitudinal followup study designed to support an established, US-based, population-based cohort of adults age 18 and older with diagnosed lupus (systemic lupus erythematosus {SLE} and skin lupus) that includes followup data collected at least once since 2015. The intent of this study is to conduct data collection, building upon the cohort and initial followup activities. This data collection should include four content areas:The natural history (e.g., severity, morbidity, mortality, disability, comorbidity, work interference, etc.) of cohort members, andTreatment (e.g., medications, therapy, self-management, etc.) of lupus including the treatment of chronic pain and opioid use, andHealth care access and gaps that adults with lupus experience, andDisparities (e.g., age, race/ethnicity, sex) and other factors associated with lupus outcomes.Component B: (A Pediatric Lupus Registry with Longitudinal Follow up):This is a project that will support an existing US-based registry of children age 0-17 years with diagnosed lupus (SLE and skin lupus). The intent of this study is to gather baseline data for children age 0-17 years and follow up data for this cohort for three additional years. The baseline and follow up data should include these 4 content areas:The natural history (e.g., severity, morbidity, mortality, disability, comorbidity, work interference, etc.) of cohort members, andTreatment (e.g., medications, therapy, self-management, etc.) of lupus including the treatment of chronic pain and opioid use, andHealth care access and gaps that children with lupus experience, andDisparities (e.g., age, race/ethnicity, sex) and other factors associated with lupus outcomes.
Link to Additional Information:
Grantor Contact Information: If you have difficulty accessing the full announcement electronically, please contact:

Jessie Hood
jvr4@cdc.gov
Email:jvr4@cdc.gov

DISPLAYING: Synopsis 1

General Information

Document Type: Grants Notice
Funding Opportunity Number: RFA-DP-19-003
Funding Opportunity Title: Epidemiology of Lupus: Longitudinal Studies in Population-Based Cohorts
Opportunity Category: Discretionary
Opportunity Category Explanation:
Funding Instrument Type: Cooperative Agreement
Category of Funding Activity: Health
Category Explanation:
Expected Number of Awards: 4
Assistance Listings: 93.283 — Centers for Disease Control and Prevention Investigations and Technical Assistance
Cost Sharing or Matching Requirement: No
Version: Synopsis 1
Posted Date: Jan 08, 2019
Last Updated Date: Jan 04, 2019
Original Closing Date for Applications:
Current Closing Date for Applications: Mar 08, 2019 Electronically submitted applications must be submitted no later than 5:00 p.m., ET, on the listed application due date.
Archive Date: Apr 07, 2019
Estimated Total Program Funding: $10,500,000
Award Ceiling: $1,000,000
Award Floor: $700,000

Eligibility

Eligible Applicants: Native American tribal governments (Federally recognized)
Small businesses
Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education
Special district governments
Public and State controlled institutions of higher education
Native American tribal organizations (other than Federally recognized tribal governments)
Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education
City or township governments
County governments
Independent school districts
Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled “Additional Information on Eligibility”
For profit organizations other than small businesses
Others (see text field entitled “Additional Information on Eligibility” for clarification)
Public housing authorities/Indian housing authorities
Private institutions of higher education
State governments
Additional Information on Eligibility: Eligibility applicants must meet the following criteria:
Component A: (Longitudinal Studies of Lupus in Population-based cohorts of Adults with Lupus: 3 Year Followup):
Criteria 1. Applicant must have an existing U.S. population-based cohort with > 400 adults ages 18 and greater at baseline, with SLE and/or skin lupus.
Criteria 2. Applicant must have at least 4 years of followup at time of application for the four content areas listed in the Approach section above (natural history, treatment, health care access, and disparities).
Component B: (A Pediatric Lupus Registry with Longitudinal Followup):
Criteria 1. Applicant must have access to an existing cohort with 200+ diagnosed U.S. lupus patients ages 0-17 years at baseline in an area that is geographically population-based.
If your application is incomplete or non-responsive to the special eligibility requirements listed in this section, it will not enter into the review process.

Additional Information

Agency Name: Centers for Disease Control and Prevention – ERA
Description: This NOFO is intended to support research on lupus through a 2-component cooperative agreement:
Component A (Longitudinal Studies in Population-based Cohorts of Adults with Lupus: 3 Year Followup):
This is a longitudinal followup study designed to support an established, US-based, population-based cohort of adults age 18 and older with diagnosed lupus (systemic lupus erythematosus {SLE} and skin lupus) that includes followup data collected at least once since 2015. The intent of this study is to conduct data collection, building upon the cohort and initial followup activities. This data collection should include four content areas:
The natural history (e.g., severity, morbidity, mortality, disability, comorbidity, work interference, etc.) of cohort members, and

Treatment (e.g., medications, therapy, self-management, etc.) of lupus including the treatment of chronic pain and opioid use, and
Health care access and gaps that adults with lupus experience, and
Disparities (e.g., age, race/ethnicity, sex) and other factors associated with lupus outcomes.

Component B: (A Pediatric Lupus Registry with Longitudinal Follow up):
This is a project that will support an existing US-based registry of children age 0-17 years with diagnosed lupus (SLE and skin lupus). The intent of this study is to gather baseline data for children age 0-17 years and follow up data for this cohort for three additional years. The baseline and follow up data should include these 4 content areas:
The natural history (e.g., severity, morbidity, mortality, disability, comorbidity, work interference, etc.) of cohort members, and

Treatment (e.g., medications, therapy, self-management, etc.) of lupus including the treatment of chronic pain and opioid use, and
Health care access and gaps that children with lupus experience, and
Disparities (e.g., age, race/ethnicity, sex) and other factors associated with lupus outcomes.

Link to Additional Information:
Grantor Contact Information: If you have difficulty accessing the full announcement electronically, please contact:

Jessie Hood
jvr4@cdc.gov
Email:jvr4@cdc.gov

Folder 311756 Full Announcement-FULL_ANNOUNCEMENT -> DP-19-003.pdf

Folder 311756 Revised Full Announcement-REVISED_FULL_ANNOUNCEMENT -> DP-19-003 Amendment.pdf

Packages

Agency Contact Information: Jessie Hood
jvr4@cdc.gov
Email: jvr4@cdc.gov
Who Can Apply: Organization Applicants

Assistance Listing Number Competition ID Competition Title Opportunity Package ID Opening Date Closing Date Actions
93.283 RFA-DP-19-003 Epidemiology of Lupus: Longitudinal Studies in Population-Based Cohorts PKG00247320 Jan 04, 2019 Mar 08, 2019 View

Package 1

Mandatory forms

311756 RR_SF424_2_0-2.0.pdf

311756 RR_Budget_1_4-1.4.pdf

311756 PHS398_ResearchPlan_4_0-4.0.pdf

311756 PHS398_CoverPageSupplement_4_0-4.0.pdf

311756 RR_OtherProjectInfo_1_4-1.4.pdf

311756 PerformanceSite_2_0-2.0.pdf

311756 RR_KeyPersonExpanded_2_0-2.0.pdf

Optional forms

311756 RR_SubawardBudget30_1_4-1.4.pdf

2025-07-09T10:42:24-05:00

Share This Post, Choose Your Platform!

About the Author: