This National Institutes of Health (NIH) grant invites cooperative agreement applications for the Data Management and Coordinating Center (DMCC), which is crucial for supporting the Rare Diseases Clinical Research Network (RDCRN). The DMCC will provide essential infrastructure and support for collaborative clinical research in rare diseases, including longitudinal studies and various clinical trials. It also aims to facilitate the training of clinical investigators and support pilot projects within the network. A significant focus for the DMCC is to advance clinical data management through innovative approaches for data mining and sharing across diverse rare diseases and platforms. Additionally, it will improve access to vital rare disease information for researchers, clinicians, patients, and the broader public.
Opportunity ID: 244733
General Information
| Document Type: | Grants Notice |
| Funding Opportunity Number: | RFA-TR-13-003 |
| Funding Opportunity Title: | Data Management and Coordinating Center (DMCC) for Rare Diseases Clinical Research Network (RDCRN) (U01) |
| Opportunity Category: | Discretionary |
| Opportunity Category Explanation: | – |
| Funding Instrument Type: | Cooperative Agreement |
| Category of Funding Activity: | Health |
| Category Explanation: | – |
| Expected Number of Awards: | 1 |
| Assistance Listings: | 93.121 — Oral Diseases and Disorders Research |
| Cost Sharing or Matching Requirement: | No |
| Version: | Synopsis 1 |
| Posted Date: | Oct 21, 2013 |
| Last Updated Date: | – |
| Original Closing Date for Applications: | Dec 19, 2013 |
| Current Closing Date for Applications: | Dec 19, 2013 |
| Archive Date: | Jan 19, 2014 |
| Estimated Total Program Funding: | $3,000,000 |
| Award Ceiling: | – |
| Award Floor: | – |
Eligibility
| Eligible Applicants: | Public and State controlled institutions of higher education City or township governments Native American tribal governments (Federally recognized) Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education County governments Independent school districts Private institutions of higher education Native American tribal organizations (other than Federally recognized tribal governments) Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education For profit organizations other than small businesses Public housing authorities/Indian housing authorities State governments Others (see text field entitled “Additional Information on Eligibility” for clarification) Special district governments Small businesses |
| Additional Information on Eligibility: | Other Eligible Applicants include the following: Alaska Native and Native Hawaiian Serving Institutions; Asian American Native American Pacific Islander Serving Institutions (AANAPISISs); Eligible Agencies of the Federal Government; Faith-based or Community-based Organizations; Hispanic-serving Institutions; Historically Black Colleges and Universities (HBCUs); Indian/Native American Tribal Governments (Other than Federally Recognized); Regional Organizations; Tribally Controlled Colleges and Universities (TCCUs) ; U.S. Territory or Possession; Non-domestic (non-U.S.) Entities (Foreign Institutions) are not eligible to apply. Non-domestic (non-U.S.) components of U.S. Organizations are not eligible to apply. Foreign components, as defined in the NIH Grants Policy Statement, are allowed. |
Additional Information
| Agency Name: | National Institutes of Health |
| Description: | The purpose of this Funding Opportunity Announcement (FOA) is to invite new and renewal cooperative agreement applications for the DMCC, which supports the RDCRN. The Network facilitates clinical research in rare diseases through support for 1) collaborative clinical research in rare diseases, including longitudinal studies of individuals with rare diseases, clinical studies and/or phase I , II and II/III trials; 2) training of clinical investigators in rare diseases research; 3) pilot and demonstration projects; 4) clinical data management that incorporates novel approaches and technologies for data management, data mining, and data sharing across rare diseases, data types, and platforms; and 5) access to information related to rare diseases for basic and clinical researchers, academic and practicing physicians, patients, and the lay public. The DMCC (U01) cooperative agreement application will focus on innovative ways to provide the infrastructure and support to the individual sites in their activities relevant to items 1-3 as well as a focus on issues relevant to items 4 and 5. See companion FOA RFA-TR-13-002 |
| Link to Additional Information: | http://grants.nih.gov/grants/guide/rfa-files/RFA-TR-13-003.html |
| Grantor Contact Information: | If you have difficulty accessing the full announcement electronically, please contact:
NIH OER Webmaster
FBOWebmaster@OD.NIH.GOV Email:FBOWebmaster@OD.NIH.GOV |
Version History
| Version | Modification Description | Updated Date |
|---|---|---|
Related Documents
There are no related documents on this grant.
Packages
| Agency Contact Information: | NIH OER Webmaster FBOWebmaster@OD.NIH.GOV Email: FBOWebmaster@OD.NIH.GOV |
| Who Can Apply: | Organization Applicants |
| Assistance Listing Number | Competition ID | Competition Title | Opportunity Package ID | Opening Date | Closing Date | Actions |
|---|---|---|---|---|---|---|
| FORMS-C | Forms-C | PKG00187130 | Nov 19, 2013 | Dec 19, 2013 | View |
Package 1
Mandatory forms
244733 RR_SF424_2_0-2.0.pdf
244733 PHS398_ResearchPlan_2_0-2.0.pdf
244733 PHS398_CoverPageSupplement_2_0-2.0.pdf
244733 RR_KeyPersonExpanded_2_0-2.0.pdf
244733 RR_OtherProjectInfo_1_3-1.3.pdf
244733 PerformanceSite_2_0-2.0.pdf
Optional forms
244733 RR_SubawardBudget30_1_3-1.3.pdf
244733 PlannedReport-1.0.pdf
244733 PHS398_CumulativeInclusionReport-1.0.pdf
244733 PHS398_ModularBudget_1_2-1.2.pdf
244733 RR_Budget_1_3-1.3.pdf
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