The Centers for Disease Control and Prevention (CDC) is offering a cooperative agreement grant to conduct population-based surveillance of spina bifida across the lifespan. This grant aims to identify children and adults with spina bifida within a state or region to estimate prevalence and describe key health outcomes. The primary purpose is to identify opportunities for improving the health and well-being of individuals living with spina bifida. Applicants will utilize existing data sources such as state birth defects surveillance programs, vital records, electronic health records, and administrative data for longitudinal follow-up. The project includes a required Component A focusing on prevalence, healthcare utilization, and long-term outcomes, with an optional Component B for special projects.
Opportunity ID: 350112
General Information
| Document Type: | Grants Notice |
| Funding Opportunity Number: | CDC-RFA-DD-24-0065 |
| Funding Opportunity Title: | Surveillance of Spina Bifida across the Lifespan |
| Opportunity Category: | Discretionary |
| Opportunity Category Explanation: | – |
| Funding Instrument Type: | Cooperative Agreement |
| Category of Funding Activity: | Health |
| Category Explanation: | – |
| Expected Number of Awards: | 4 |
| Assistance Listings: | 93.073 — Birth Defects and Developmental Disabilities – Prevention and Surveillance |
| Cost Sharing or Matching Requirement: | No |
| Version: | Synopsis 2 |
| Posted Date: | Feb 15, 2024 |
| Last Updated Date: | Apr 05, 2024 |
| Original Closing Date for Applications: | Apr 15, 2024 Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date. |
| Current Closing Date for Applications: | Apr 15, 2024 Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date. |
| Archive Date: | May 15, 2024 |
| Estimated Total Program Funding: | $8,000,000 |
| Award Ceiling: | $450,000 |
| Award Floor: | $150,000 |
Eligibility
| Eligible Applicants: | Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled “Additional Information on Eligibility” |
| Additional Information on Eligibility: | Component A. Surveillance of Spina Bifida across the LifespanThe applicant must have public health authority to conduct surveillance of spina bifida. Also, the applicant must have access to state birth defects surveillance data and state vital records data. Component B. Special Projects for Surveillance of Spina Bifida (optional)Component B applicants must submit an application for Component A. To be funded for Component B, the applicant must also be funded for Component A. |
Additional Information
| Agency Name: | Centers for Disease Control – NCBDDD |
| Description: | Synopsis: CDC-RFA-DD-24-0065 solicits non-research, cooperative agreement applications to conduct a project to identify a population-based sample of children and adults with spina bifida to estimate the prevalence and describe key outcomes with the goal of identifying opportunities to improve the health of individuals living with spina bifida. The population included in this surveillance activity can be an entire state or a region within a state. Individuals with spina bifida should be identified through existing data sources including the state birth defects surveillance program or vital records and long term health outcomes should be assessed using sources such as electronic health records, administrative data (e.g., Medicaid/Medicare, hospital discharge), or other sources available to funding recipients. This project will involve a required component (A) and an optional component (B). The total estimated funding for Component A is $8,000,000 for 5 years. The total estimated funding for Component B is $400,000 for 2 years (e.g., years 2 and 3 only) and will be subject to available funding.Background: Spina bifida is one of the most common types of structural birth defects with approximately 1,400 children born with spina bifida each year in the United States (U.S.). Current estimates for the U.S. include a greater number of adults living with spina bifida than children. Conducting population-based surveillance of children and adults with spina bifida is challenging. Birth defects surveillance systems identify babies born with a birth defect but do not follow them as children and adults. The National Spina Bifida Patient Registry (NSBPR) provides valuable longitudinal information on the clinical care provided by spina bifida clinics but lacks information from other clinical settings and from the overall population of individuals with spina bifida. Standard survey methods, such as those that sample households, would not identify enough children and adults with spina bifida to produce reliable estimates and description of the population. Therefore, the objective of this surveillance project is to conduct population-based surveillance of children and adults with spina bifida by combining information from multiple sources (e.g., state birth defects surveillance systems, vital records, electronic health records, administrative data). Through this surveillance activity, it would be possible to assess their health status and healthcare use.Objectives: Component A objectives include: (1) estimate prevalence of spina bifida across all ages, along with mortality and survival; (2) describe healthcare utilization and sources of care; and (3) assess health status and long-term outcomes. The surveillance area can be an entire state or a region within in a state, with the applicant utilizing multiple data sources to generate an accurate and complete population-based sample. Required data sources include population-based birth defects surveillance systems (e.g., state birth defects surveillance), vital records, and sources for longitudinal follow-up (e.g., electronic health records, administrative data [e.g., Medicaid/Medicare; hospital discharge]). The objective of Component B will be to develop, implement, and evaluate a special project related to SB (e.g., novel approaches to case-finding, reporting, or outcome prediction). |
| Link to Additional Information: | – |
| Grantor Contact Information: | If you have difficulty accessing the full announcement electronically, please contact:
Justin Horhn
jgi7@cdc.gov Email:jgi7@cdc.gov |
Version History
| Version | Modification Description | Updated Date |
|---|---|---|
| DD24-0065 has been modified to include a FAQ document with a link to access all questions and answers. | Apr 05, 2024 | |
| Feb 15, 2024 | ||
| Forwarded to queue. | Sep 06, 2023 | |
| Forwarded to queue. | Sep 06, 2023 | |
| Sep 06, 2023 |
DISPLAYING: Synopsis 2
General Information
| Document Type: | Grants Notice |
| Funding Opportunity Number: | CDC-RFA-DD-24-0065 |
| Funding Opportunity Title: | Surveillance of Spina Bifida across the Lifespan |
| Opportunity Category: | Discretionary |
| Opportunity Category Explanation: | – |
| Funding Instrument Type: | Cooperative Agreement |
| Category of Funding Activity: | Health |
| Category Explanation: | – |
| Expected Number of Awards: | 4 |
| Assistance Listings: | 93.073 — Birth Defects and Developmental Disabilities – Prevention and Surveillance |
| Cost Sharing or Matching Requirement: | No |
| Version: | Synopsis 2 |
| Posted Date: | Feb 15, 2024 |
| Last Updated Date: | Apr 05, 2024 |
| Original Closing Date for Applications: | Apr 15, 2024 Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date. |
| Current Closing Date for Applications: | Apr 15, 2024 Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date. |
| Archive Date: | May 15, 2024 |
| Estimated Total Program Funding: | $8,000,000 |
| Award Ceiling: | $450,000 |
| Award Floor: | $150,000 |
Eligibility
| Eligible Applicants: | Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled “Additional Information on Eligibility” |
| Additional Information on Eligibility: | Component A. Surveillance of Spina Bifida across the LifespanThe applicant must have public health authority to conduct surveillance of spina bifida. Also, the applicant must have access to state birth defects surveillance data and state vital records data. Component B. Special Projects for Surveillance of Spina Bifida (optional)Component B applicants must submit an application for Component A. To be funded for Component B, the applicant must also be funded for Component A. |
Additional Information
| Agency Name: | Centers for Disease Control – NCBDDD |
| Description: | Synopsis: CDC-RFA-DD-24-0065 solicits non-research, cooperative agreement applications to conduct a project to identify a population-based sample of children and adults with spina bifida to estimate the prevalence and describe key outcomes with the goal of identifying opportunities to improve the health of individuals living with spina bifida. The population included in this surveillance activity can be an entire state or a region within a state. Individuals with spina bifida should be identified through existing data sources including the state birth defects surveillance program or vital records and long term health outcomes should be assessed using sources such as electronic health records, administrative data (e.g., Medicaid/Medicare, hospital discharge), or other sources available to funding recipients. This project will involve a required component (A) and an optional component (B). The total estimated funding for Component A is $8,000,000 for 5 years. The total estimated funding for Component B is $400,000 for 2 years (e.g., years 2 and 3 only) and will be subject to available funding.Background: Spina bifida is one of the most common types of structural birth defects with approximately 1,400 children born with spina bifida each year in the United States (U.S.). Current estimates for the U.S. include a greater number of adults living with spina bifida than children. Conducting population-based surveillance of children and adults with spina bifida is challenging. Birth defects surveillance systems identify babies born with a birth defect but do not follow them as children and adults. The National Spina Bifida Patient Registry (NSBPR) provides valuable longitudinal information on the clinical care provided by spina bifida clinics but lacks information from other clinical settings and from the overall population of individuals with spina bifida. Standard survey methods, such as those that sample households, would not identify enough children and adults with spina bifida to produce reliable estimates and description of the population. Therefore, the objective of this surveillance project is to conduct population-based surveillance of children and adults with spina bifida by combining information from multiple sources (e.g., state birth defects surveillance systems, vital records, electronic health records, administrative data). Through this surveillance activity, it would be possible to assess their health status and healthcare use.Objectives: Component A objectives include: (1) estimate prevalence of spina bifida across all ages, along with mortality and survival; (2) describe healthcare utilization and sources of care; and (3) assess health status and long-term outcomes. The surveillance area can be an entire state or a region within in a state, with the applicant utilizing multiple data sources to generate an accurate and complete population-based sample. Required data sources include population-based birth defects surveillance systems (e.g., state birth defects surveillance), vital records, and sources for longitudinal follow-up (e.g., electronic health records, administrative data [e.g., Medicaid/Medicare; hospital discharge]). The objective of Component B will be to develop, implement, and evaluate a special project related to SB (e.g., novel approaches to case-finding, reporting, or outcome prediction). |
| Link to Additional Information: | – |
| Grantor Contact Information: | If you have difficulty accessing the full announcement electronically, please contact:
Justin Horhn
jgi7@cdc.gov Email:jgi7@cdc.gov |
DISPLAYING: Synopsis 1
General Information
| Document Type: | Grants Notice |
| Funding Opportunity Number: | CDC-RFA-DD-24-0065 |
| Funding Opportunity Title: | Surveillance of Spina Bifida across the Lifespan |
| Opportunity Category: | Discretionary |
| Opportunity Category Explanation: | – |
| Funding Instrument Type: | Cooperative Agreement |
| Category of Funding Activity: | Health |
| Category Explanation: | – |
| Expected Number of Awards: | 4 |
| Assistance Listings: | 93.073 — Birth Defects and Developmental Disabilities – Prevention and Surveillance |
| Cost Sharing or Matching Requirement: | No |
| Version: | Synopsis 1 |
| Posted Date: | Feb 15, 2024 |
| Last Updated Date: | Feb 15, 2024 |
| Original Closing Date for Applications: | – |
| Current Closing Date for Applications: | Apr 15, 2024 Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date. |
| Archive Date: | May 15, 2024 |
| Estimated Total Program Funding: | $8,000,000 |
| Award Ceiling: | $450,000 |
| Award Floor: | $150,000 |
Eligibility
| Eligible Applicants: | Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled “Additional Information on Eligibility” |
| Additional Information on Eligibility: | Component A. Surveillance of Spina Bifida across the LifespanThe applicant must have public health authority to conduct surveillance of spina bifida. Also, the applicant must have access to state birth defects surveillance data and state vital records data. Component B. Special Projects for Surveillance of Spina Bifida (optional)Component B applicants must submit an application for Component A. To be funded for Component B, the applicant must also be funded for Component A. |
Additional Information
| Agency Name: | Centers for Disease Control – NCBDDD |
| Description: | Synopsis: CDC-RFA-DD-24-0065 solicits non-research, cooperative agreement applications to conduct a project to identify a population-based sample of children and adults with spina bifida to estimate the prevalence and describe key outcomes with the goal of identifying opportunities to improve the health of individuals living with spina bifida. The population included in this surveillance activity can be an entire state or a region within a state. Individuals with spina bifida should be identified through existing data sources including the state birth defects surveillance program or vital records and long term health outcomes should be assessed using sources such as electronic health records, administrative data (e.g., Medicaid/Medicare, hospital discharge), or other sources available to funding recipients. This project will involve a required component (A) and an optional component (B). The total estimated funding for Component A is $8,000,000 for 5 years. The total estimated funding for Component B is $400,000 for 2 years (e.g., years 2 and 3 only) and will be subject to available funding.Background: Spina bifida is one of the most common types of structural birth defects with approximately 1,400 children born with spina bifida each year in the United States (U.S.). Current estimates for the U.S. include a greater number of adults living with spina bifida than children. Conducting population-based surveillance of children and adults with spina bifida is challenging. Birth defects surveillance systems identify babies born with a birth defect but do not follow them as children and adults. The National Spina Bifida Patient Registry (NSBPR) provides valuable longitudinal information on the clinical care provided by spina bifida clinics but lacks information from other clinical settings and from the overall population of individuals with spina bifida. Standard survey methods, such as those that sample households, would not identify enough children and adults with spina bifida to produce reliable estimates and description of the population. Therefore, the objective of this surveillance project is to conduct population-based surveillance of children and adults with spina bifida by combining information from multiple sources (e.g., state birth defects surveillance systems, vital records, electronic health records, administrative data). Through this surveillance activity, it would be possible to assess their health status and healthcare use.Objectives: Component A objectives include: (1) estimate prevalence of spina bifida across all ages, along with mortality and survival; (2) describe healthcare utilization and sources of care; and (3) assess health status and long-term outcomes. The surveillance area can be an entire state or a region within in a state, with the applicant utilizing multiple data sources to generate an accurate and complete population-based sample. Required data sources include population-based birth defects surveillance systems (e.g., state birth defects surveillance), vital records, and sources for longitudinal follow-up (e.g., electronic health records, administrative data [e.g., Medicaid/Medicare; hospital discharge]). The objective of Component B will be to develop, implement, and evaluate a special project related to SB (e.g., novel approaches to case-finding, reporting, or outcome prediction). |
| Link to Additional Information: | – |
| Grantor Contact Information: | If you have difficulty accessing the full announcement electronically, please contact:
Justin Horhn
jgi7@cdc.gov Email:jgi7@cdc.gov |
DISPLAYING: Forecast 3
General Information
| Document Type: | Grants Notice |
| Funding Opportunity Number: | CDC-RFA-DD-24-0065 |
| Funding Opportunity Title: | Surveillance of Spina Bifida across the Lifespan |
| Opportunity Category: | Discretionary |
| Opportunity Category Explanation: | – |
| Funding Instrument Type: | Cooperative Agreement |
| Category of Funding Activity: | Health |
| Category Explanation: | – |
| Expected Number of Awards: | 4 |
| Assistance Listings: | 93.073 — Birth Defects and Developmental Disabilities – Prevention and Surveillance |
| Cost Sharing or Matching Requirement: | No |
| Version: | Forecast 3 |
| Posted Date: | Sep 06, 2023 |
| Last Updated Date: | Feb 09, 2024 |
| Original Closing Date for Applications: | – |
| Current Closing Date for Applications: | – |
| Archive Date: | May 15, 2024 |
| Estimated Total Program Funding: | $8,000,000 |
| Award Ceiling: | $400,000 |
| Award Floor: | $150,000 |
Eligibility
| Eligible Applicants: | Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled “Additional Information on Eligibility” |
| Additional Information on Eligibility: | Component A. Surveillance of Spina Bifida across the LifespanThe applicant must have public health authority to conduct surveillance of spina bifida. Also, the applicant must have access to state birth defects surveillance data and state vital records data. Component B. Special Projects for Surveillance of Spina Bifida (optional)Component B applicants must submit an application for Component A. To be funded for Component B, the applicant must also be funded for Component A. |
Additional Information
| Agency Name: | Centers for Disease Control – NCBDDD |
| Description: | Synopsis: CDC-RFA-DD-24-0065 solicits non-research, cooperative agreement applications to conduct a project to identify a population-based sample of children and adults with spina bifida to estimate the prevalence and describe key outcomes with the goal of identifying opportunities to improve the health of individuals living with spina bifida. The population included in this surveillance activity can be an entire state or a region within a state. Individuals with spina bifida should be identified through existing data sources including the state birth defects surveillance program or vital records and long term health outcomes should be assessed using sources such as electronic health records, administrative data (e.g., Medicaid/Medicare, hospital discharge), or other sources available to funding recipients. This project will involve a required component (A) and an optional component (B). The total estimated funding for Component A is $8,000,000 for 5 years. The total estimated funding for Component B is $400,000 for 2 years (e.g., years 2 and 3 only) and will be subject to available funding.Background: Spina bifida is one of the most common types of structural birth defects with approximately 1,400 children born with spina bifida each year in the United States (U.S.). Current estimates for the U.S. include a greater number of adults living with spina bifida than children. Conducting population-based surveillance of children and adults with spina bifida is challenging. Birth defects surveillance systems identify babies born with a birth defect but do not follow them as children and adults. The National Spina Bifida Patient Registry (NSBPR) provides valuable longitudinal information on the clinical care provided by spina bifida clinics but lacks information from other clinical settings and from the overall population of individuals with spina bifida. Standard survey methods, such as those that sample households, would not identify enough children and adults with spina bifida to produce reliable estimates and description of the population. Therefore, the objective of this surveillance project is to conduct population-based surveillance of children and adults with spina bifida by combining information from multiple sources (e.g., state birth defects surveillance systems, vital records, electronic health records, administrative data). Through this surveillance activity, it would be possible to assess their health status and healthcare use.Objectives: Component A objectives include: (1) estimate prevalence of spina bifida across all ages, along with mortality and survival; (2) describe healthcare utilization and sources of care; and (3) assess health status and long-term outcomes. The surveillance area can be an entire state or a region within in a state, with the applicant utilizing multiple data sources to generate an accurate and complete population-based sample. Required data sources include population-based birth defects surveillance systems (e.g., state birth defects surveillance), vital records, and sources for longitudinal follow-up (e.g., electronic health records, administrative data [e.g., Medicaid/Medicare; hospital discharge]). The objective of Component B will be to develop, implement, and evaluate a special project related to SB (e.g., novel approaches to case-finding, reporting, or outcome prediction). |
| Link to Additional Information: | – |
| Grantor Contact Information: | If you have difficulty accessing the full announcement electronically, please contact:
–
Email:jgi7@cdc.gov |
DISPLAYING: Forecast 2
General Information
| Document Type: | Grants Notice |
| Funding Opportunity Number: | CDC-RFA-DD-24-0065 |
| Funding Opportunity Title: | Surveillance of Spina Bifida across the Lifespan |
| Opportunity Category: | Discretionary |
| Opportunity Category Explanation: | – |
| Funding Instrument Type: | Cooperative Agreement |
| Category of Funding Activity: | Health |
| Category Explanation: | – |
| Expected Number of Awards: | 4 |
| Assistance Listings: | 93.073 — Birth Defects and Developmental Disabilities – Prevention and Surveillance |
| Cost Sharing or Matching Requirement: | No |
| Version: | Forecast 2 |
| Posted Date: | Sep 06, 2023 |
| Last Updated Date: | Feb 09, 2024 |
| Original Closing Date for Applications: | – |
| Current Closing Date for Applications: | – |
| Archive Date: | May 15, 2024 |
| Estimated Total Program Funding: | $8,000,000 |
| Award Ceiling: | $400,000 |
| Award Floor: | $150,000 |
Eligibility
| Eligible Applicants: | Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled “Additional Information on Eligibility” |
| Additional Information on Eligibility: | Component A. Surveillance of Spina Bifida across the LifespanThe applicant must have public health authority to conduct surveillance of spina bifida. Also, the applicant must have access to state birth defects surveillance data and state vital records data. Component B. Special Projects for Surveillance of Spina Bifida (optional)Component B applicants must submit an application for Component A. To be funded for Component B, the applicant must also be funded for Component A. |
Additional Information
| Agency Name: | Centers for Disease Control – NCBDDD |
| Description: | Synopsis: CDC-RFA-DD-24-0065 solicits non-research, cooperative agreement applications to conduct a project to identify a population-based sample of children and adults with spina bifida to estimate the prevalence and describe key outcomes with the goal of identifying opportunities to improve the health of individuals living with spina bifida. The population included in this surveillance activity can be an entire state or a region within a state. Individuals with spina bifida should be identified through existing data sources including the state birth defects surveillance program or vital records and long term health outcomes should be assessed using sources such as electronic health records, administrative data (e.g., Medicaid/Medicare, hospital discharge), or other sources available to funding recipients. This project will involve a required component (A) and an optional component (B). The total estimated funding for Component A is $8,000,000 for 5 years. The total estimated funding for Component B is $400,000 for 2 years (e.g., years 2 and 3 only) and will be subject to available funding.Background: Spina bifida is one of the most common types of structural birth defects with approximately 1,400 children born with spina bifida each year in the United States (U.S.). Current estimates for the U.S. include a greater number of adults living with spina bifida than children. Conducting population-based surveillance of children and adults with spina bifida is challenging. Birth defects surveillance systems identify babies born with a birth defect but do not follow them as children and adults. The National Spina Bifida Patient Registry (NSBPR) provides valuable longitudinal information on the clinical care provided by spina bifida clinics but lacks information from other clinical settings and from the overall population of individuals with spina bifida. Standard survey methods, such as those that sample households, would not identify enough children and adults with spina bifida to produce reliable estimates and description of the population. Therefore, the objective of this surveillance project is to conduct population-based surveillance of children and adults with spina bifida by combining information from multiple sources (e.g., state birth defects surveillance systems, vital records, electronic health records, administrative data). Through this surveillance activity, it would be possible to assess their health status and healthcare use.Objectives: Component A objectives include: (1) estimate prevalence of spina bifida across all ages, along with mortality and survival; (2) describe healthcare utilization and sources of care; and (3) assess health status and long-term outcomes. The surveillance area can be an entire state or a region within in a state, with the applicant utilizing multiple data sources to generate an accurate and complete population-based sample. Required data sources include population-based birth defects surveillance systems (e.g., state birth defects surveillance), vital records, and sources for longitudinal follow-up (e.g., electronic health records, administrative data [e.g., Medicaid/Medicare; hospital discharge]). The objective of Component B will be to develop, implement, and evaluate a special project related to SB (e.g., novel approaches to case-finding, reporting, or outcome prediction). |
| Link to Additional Information: | – |
| Grantor Contact Information: | If you have difficulty accessing the full announcement electronically, please contact:
–
Email:jgi7@cdc.gov |
DISPLAYING: Forecast 1
General Information
| Document Type: | Grants Notice |
| Funding Opportunity Number: | CDC-RFA-DD-24-0065 |
| Funding Opportunity Title: | Surveillance of Spina Bifida across the Lifespan |
| Opportunity Category: | Discretionary |
| Opportunity Category Explanation: | – |
| Funding Instrument Type: | Cooperative Agreement |
| Category of Funding Activity: | Health |
| Category Explanation: | – |
| Expected Number of Awards: | 4 |
| Assistance Listings: | 93.073 — Birth Defects and Developmental Disabilities – Prevention and Surveillance |
| Cost Sharing or Matching Requirement: | No |
| Version: | Forecast 1 |
| Posted Date: | Sep 06, 2023 |
| Last Updated Date: | Sep 06, 2023 |
| Original Closing Date for Applications: | – |
| Current Closing Date for Applications: | – |
| Archive Date: | May 05, 2024 |
| Estimated Total Program Funding: | $8,000,000 |
| Award Ceiling: | $400,000 |
| Award Floor: | $150,000 |
Eligibility
| Eligible Applicants: | Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled “Additional Information on Eligibility” |
| Additional Information on Eligibility: | Component A. Surveillance of Spina Bifida across the LifespanThe applicant must have public health authority to conduct surveillance of spina bifida. Also, the applicant must have access to state birth defects surveillance data and state vital records data. Component B. Special Projects for Surveillance of Spina Bifida (optional)Component B applicants must submit an application for Component A. To be funded for Component B, the applicant must also be funded for Component A. |
Additional Information
| Agency Name: | Centers for Disease Control – NCBDDD |
| Description: | Synopsis: CDC-RFA-DD-24-0065 solicits non-research, cooperative agreement applications to conduct a project to identify a population-based sample of children and adults with spina bifida to estimate the prevalence and describe key outcomes with the goal of identifying opportunities to improve the health of individuals living with spina bifida. The population included in this surveillance activity can be an entire state or a region within a state. Individuals with spina bifida should be identified through existing data sources including the state birth defects surveillance program or vital records and long term health outcomes should be assessed using sources such as electronic health records, administrative data (e.g., Medicaid/Medicare, hospital discharge), or other sources available to funding recipients. This project will involve a required component (A) and an optional component (B). The total estimated funding for Component A is $8,000,000 for 5 years. The total estimated funding for Component B is $400,000 for 2 years (e.g., years 2 and 3 only) and will be subject to available funding.Background: Spina bifida is one of the most common types of structural birth defects with approximately 1,400 children born with spina bifida each year in the United States (U.S.). Current estimates for the U.S. include a greater number of adults living with spina bifida than children. Conducting population-based surveillance of children and adults with spina bifida is challenging. Birth defects surveillance systems identify babies born with a birth defect but do not follow them as children and adults. The National Spina Bifida Patient Registry (NSBPR) provides valuable longitudinal information on the clinical care provided by spina bifida clinics but lacks information from other clinical settings and from the overall population of individuals with spina bifida. Standard survey methods, such as those that sample households, would not identify enough children and adults with spina bifida to produce reliable estimates and description of the population. Therefore, the objective of this surveillance project is to conduct population-based surveillance of children and adults with spina bifida by combining information from multiple sources (e.g., state birth defects surveillance systems, vital records, electronic health records, administrative data). Through this surveillance activity, it would be possible to assess their health status and healthcare use.Objectives: Component A objectives include: (1) estimate prevalence of spina bifida across all ages, along with mortality and survival; (2) describe healthcare utilization and sources of care; and (3) assess health status and long-term outcomes. The surveillance area can be an entire state or a region within in a state, with the applicant utilizing multiple data sources to generate an accurate and complete population-based sample. Required data sources include population-based birth defects surveillance systems (e.g., state birth defects surveillance), vital records, and sources for longitudinal follow-up (e.g., electronic health records, administrative data [e.g., Medicaid/Medicare; hospital discharge]). The objective of Component B will be to develop and test novel approaches to case-finding, reporting, or outcome prediction (e.g., machine learning algorithms, natural language processing). |
| Link to Additional Information: | – |
| Grantor Contact Information: | If you have difficulty accessing the full announcement electronically, please contact:
–
Email:jgi7@cdc.gov |
Related Documents
Folder 350112 Full Announcement-Full Announcement -> Foa_Content_of_CDC-RFA-DD-24-0065.pdf
Folder 350112 Other Supporting Documents-Other Supporting Documents -> DD24-0065 Surveillance of Spina Bifida Across the Lifespan – FAQ.pdf
Packages
| Agency Contact Information: | Justin Horhn jgi7@cdc.gov Email: jgi7@cdc.gov |
| Who Can Apply: | Organization Applicants |
| Assistance Listing Number | Competition ID | Competition Title | Opportunity Package ID | Opening Date | Closing Date | Actions |
|---|---|---|---|---|---|---|
| 93.073 | CDC-RFA-DD-24-0065 | Surveillance of Spina Bifida across the Lifespan | PKG00284918 | Feb 15, 2024 | Apr 15, 2024 | View |
Package 1
Mandatory forms
350112 SF424_4_0-4.0.pdf
350112 Project_AbstractSummary_2_0-2.0.pdf
350112 SFLLL_2_0-2.0.pdf
350112 SF424A-1.0.pdf
350112 BudgetNarrativeAttachments_1_2-1.2.pdf
350112 ProjectNarrativeAttachments_1_2-1.2.pdf
Optional forms
350112 OtherNarrativeAttachments_1_2-1.2.pdf
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