Opportunity ID: 310904
General Information
| Document Type: | Grants Notice |
| Funding Opportunity Number: | RFA-DD-19-002 |
| Funding Opportunity Title: | The Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet) |
| Opportunity Category: | Discretionary |
| Opportunity Category Explanation: | – |
| Funding Instrument Type: | Cooperative Agreement |
| Category of Funding Activity: | Health |
| Category Explanation: | – |
| Expected Number of Awards: | 15 |
| Assistance Listings: | 93.315 — Rare Disorders: Research, Surveillance, Health Promotion, and Education |
| Cost Sharing or Matching Requirement: | No |
| Version: | Synopsis 2 |
| Posted Date: | Dec 07, 2018 |
| Last Updated Date: | Feb 04, 2019 |
| Original Closing Date for Applications: | Feb 13, 2019 Electronically submitted applications must be submitted no later than 5:00 p.m., ET, on the listed application due date. |
| Current Closing Date for Applications: | Feb 13, 2019 Electronically submitted applications must be submitted no later than 5:00 p.m., ET, on the listed application due date. |
| Archive Date: | Mar 15, 2019 |
| Estimated Total Program Funding: | $16,250,000 |
| Award Ceiling: | $375,000 |
| Award Floor: | $0 |
Eligibility
| Eligible Applicants: | Small businesses Others (see text field entitled “Additional Information on Eligibility” for clarification) Public and State controlled institutions of higher education County governments Native American tribal governments (Federally recognized) State governments City or township governments For profit organizations other than small businesses Private institutions of higher education Independent school districts Public housing authorities/Indian housing authorities Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education Special district governments Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled “Additional Information on Eligibility” Native American tribal organizations (other than Federally recognized tribal governments) |
| Additional Information on Eligibility: | For an applicant to be considered they must be responsive to the information here. Component A – Core-Current: Applicants must document current funding under RFA DD-14-001 Surveillance and Research of Muscular Dystrophies and Neuromuscular Disorders. Component B – Core-New: Applicants must propose a study site that should be a specific geographic area with a population of at least 3 million people including a large minority population (e.g. African American, Asian, or Hispanic). Component C – Enhanced-Dissemination: Applicants must submit an application for Component A to apply for Component C. Component D – Enhanced-DCC: Applicants must submit an application for Component A or B to apply for Component D. Component E – Enhanced-Abstractor: Applicants must submit an application for Component A to apply for Component E. If your application is incomplete or non-responsive to the special eligibility requirements listed in this section, it will not enter the review process. |
Additional Information
| Agency Name: | Centers for Disease Control and Prevention – ERA |
| Description: | The purpose of this NOFO is to better understand the public health and clinical impacts of living with MD by conducting longitudinal, population-based surveillance and research of eligible MDs (DMD, BMD, DM, FSHD, LGMD, CMD, EDMD, OPMD, and Distal MD). The current cycle will focus on identifying eligible MD cases, conducting longitudinal follow-up and research, analyzing data, and publishing and disseminating the results. Current MD STARnet sites will collect data to estimate prevalence and survival and additional clinical data on existing MD cohorts. New MD STARnet sites will focus on identifying eligible MD cases and collecting data to estimate prevalence, survival and track key clinical indicators. Identification of cases through population-based surveillance will enable existing and new sites to conduct research on these populations. This information is expected to advance understanding of diagnosed prevalence, disease progression and survival; clinical care and interventions and their alignment with recommended care; disparities in access to care; the association of treatment with outcomes, and the impact of MD on the lives of affected individuals and their families. |
| Link to Additional Information: | – |
| Grantor Contact Information: | If you have difficulty accessing the full announcement electronically, please contact:
Marcella Law
mah7@cdc.gov Email:mah7@cdc.gov |
Version History
| Version | Modification Description | Updated Date |
|---|---|---|
| Amend NOFO to add Q&A. | Feb 04, 2019 | |
| Feb 04, 2019 |
DISPLAYING: Synopsis 2
General Information
| Document Type: | Grants Notice |
| Funding Opportunity Number: | RFA-DD-19-002 |
| Funding Opportunity Title: | The Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet) |
| Opportunity Category: | Discretionary |
| Opportunity Category Explanation: | – |
| Funding Instrument Type: | Cooperative Agreement |
| Category of Funding Activity: | Health |
| Category Explanation: | – |
| Expected Number of Awards: | 15 |
| Assistance Listings: | 93.315 — Rare Disorders: Research, Surveillance, Health Promotion, and Education |
| Cost Sharing or Matching Requirement: | No |
| Version: | Synopsis 2 |
| Posted Date: | Dec 07, 2018 |
| Last Updated Date: | Feb 04, 2019 |
| Original Closing Date for Applications: | Feb 13, 2019 Electronically submitted applications must be submitted no later than 5:00 p.m., ET, on the listed application due date. |
| Current Closing Date for Applications: | Feb 13, 2019 Electronically submitted applications must be submitted no later than 5:00 p.m., ET, on the listed application due date. |
| Archive Date: | Mar 15, 2019 |
| Estimated Total Program Funding: | $16,250,000 |
| Award Ceiling: | $375,000 |
| Award Floor: | $0 |
Eligibility
| Eligible Applicants: | Small businesses Others (see text field entitled “Additional Information on Eligibility” for clarification) Public and State controlled institutions of higher education County governments Native American tribal governments (Federally recognized) State governments City or township governments For profit organizations other than small businesses Private institutions of higher education Independent school districts Public housing authorities/Indian housing authorities Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education Special district governments Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled “Additional Information on Eligibility” Native American tribal organizations (other than Federally recognized tribal governments) |
| Additional Information on Eligibility: | For an applicant to be considered they must be responsive to the information here. Component A – Core-Current: Applicants must document current funding under RFA DD-14-001 Surveillance and Research of Muscular Dystrophies and Neuromuscular Disorders. Component B – Core-New: Applicants must propose a study site that should be a specific geographic area with a population of at least 3 million people including a large minority population (e.g. African American, Asian, or Hispanic). Component C – Enhanced-Dissemination: Applicants must submit an application for Component A to apply for Component C. Component D – Enhanced-DCC: Applicants must submit an application for Component A or B to apply for Component D. Component E – Enhanced-Abstractor: Applicants must submit an application for Component A to apply for Component E. If your application is incomplete or non-responsive to the special eligibility requirements listed in this section, it will not enter the review process. |
Additional Information
| Agency Name: | Centers for Disease Control and Prevention – ERA |
| Description: | The purpose of this NOFO is to better understand the public health and clinical impacts of living with MD by conducting longitudinal, population-based surveillance and research of eligible MDs (DMD, BMD, DM, FSHD, LGMD, CMD, EDMD, OPMD, and Distal MD). The current cycle will focus on identifying eligible MD cases, conducting longitudinal follow-up and research, analyzing data, and publishing and disseminating the results. Current MD STARnet sites will collect data to estimate prevalence and survival and additional clinical data on existing MD cohorts. New MD STARnet sites will focus on identifying eligible MD cases and collecting data to estimate prevalence, survival and track key clinical indicators. Identification of cases through population-based surveillance will enable existing and new sites to conduct research on these populations. This information is expected to advance understanding of diagnosed prevalence, disease progression and survival; clinical care and interventions and their alignment with recommended care; disparities in access to care; the association of treatment with outcomes, and the impact of MD on the lives of affected individuals and their families. |
| Link to Additional Information: | – |
| Grantor Contact Information: | If you have difficulty accessing the full announcement electronically, please contact:
Marcella Law
mah7@cdc.gov Email:mah7@cdc.gov |
DISPLAYING: Synopsis 1
General Information
| Document Type: | Grants Notice |
| Funding Opportunity Number: | RFA-DD-19-002 |
| Funding Opportunity Title: | The Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet) |
| Opportunity Category: | Discretionary |
| Opportunity Category Explanation: | – |
| Funding Instrument Type: | Cooperative Agreement |
| Category of Funding Activity: | Health |
| Category Explanation: | – |
| Expected Number of Awards: | 15 |
| Assistance Listings: | 93.315 — Rare Disorders: Research, Surveillance, Health Promotion, and Education |
| Cost Sharing or Matching Requirement: | No |
| Version: | Synopsis 1 |
| Posted Date: | Feb 04, 2019 |
| Last Updated Date: | Dec 07, 2018 |
| Original Closing Date for Applications: | – |
| Current Closing Date for Applications: | Feb 13, 2019 Electronically submitted applications must be submitted no later than 5:00 p.m., ET, on the listed application due date. |
| Archive Date: | Mar 15, 2019 |
| Estimated Total Program Funding: | $16,250,000 |
| Award Ceiling: | $375,000 |
| Award Floor: | $0 |
Eligibility
| Eligible Applicants: | For profit organizations other than small businesses Special district governments Public and State controlled institutions of higher education State governments Public housing authorities/Indian housing authorities Native American tribal governments (Federally recognized) Others (see text field entitled “Additional Information on Eligibility” for clarification) Private institutions of higher education Independent school districts Small businesses City or township governments Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education County governments Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled “Additional Information on Eligibility” Native American tribal organizations (other than Federally recognized tribal governments) |
| Additional Information on Eligibility: | For an applicant to be considered they must be responsive to the information here. Component A – Core-Current: Applicants must document current funding under RFA DD-14-001 Surveillance and Research of Muscular Dystrophies and Neuromuscular Disorders. Component B – Core-New: Applicants must propose a study site that should be a specific geographic area with a population of at least 3 million people including a large minority population (e.g. African American, Asian, or Hispanic). Component C – Enhanced-Dissemination: Applicants must submit an application for Component A to apply for Component C. Component D – Enhanced-DCC: Applicants must submit an application for Component A or B to apply for Component D. Component E – Enhanced-Abstractor: Applicants must submit an application for Component A to apply for Component E. If your application is incomplete or non-responsive to the special eligibility requirements listed in this section, it will not enter the review process. |
Additional Information
| Agency Name: | Centers for Disease Control and Prevention – ERA |
| Description: | The purpose of this NOFO is to better understand the public health and clinical impacts of living with MD by conducting longitudinal, population-based surveillance and research of eligible MDs (DMD, BMD, DM, FSHD, LGMD, CMD, EDMD, OPMD, and Distal MD). The current cycle will focus on identifying eligible MD cases, conducting longitudinal follow-up and research, analyzing data, and publishing and disseminating the results. Current MD STARnet sites will collect data to estimate prevalence and survival and additional clinical data on existing MD cohorts. New MD STARnet sites will focus on identifying eligible MD cases and collecting data to estimate prevalence, survival and track key clinical indicators. Identification of cases through population-based surveillance will enable existing and new sites to conduct research on these populations. This information is expected to advance understanding of diagnosed prevalence, disease progression and survival; clinical care and interventions and their alignment with recommended care; disparities in access to care; the association of treatment with outcomes, and the impact of MD on the lives of affected individuals and their families. |
| Link to Additional Information: | – |
| Grantor Contact Information: | If you have difficulty accessing the full announcement electronically, please contact:
Marcella Law
mah7@cdc.gov Email:mah7@cdc.gov |
Related Documents
Packages
| Agency Contact Information: | Marcella Law mah7@cdc.gov Email: mah7@cdc.gov |
| Who Can Apply: | Organization Applicants |
| Assistance Listing Number | Competition ID | Competition Title | Opportunity Package ID | Opening Date | Closing Date | Actions |
|---|---|---|---|---|---|---|
| 93.315 | RFA-DD-19-002 | The Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet) | PKG00246726 | Dec 07, 2018 | Feb 13, 2019 | View |
Package 1
Mandatory forms
Optional forms
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