Opportunity ID: 270661

General Information

Document Type: Grants Notice
Funding Opportunity Number: RFA-DD-15-003
Funding Opportunity Title: Using Longitudinal Data to Characterize the Natural History of Fragile X Syndrome to Improve Services and Outcomes
Opportunity Category: Discretionary
Opportunity Category Explanation:
Funding Instrument Type: Cooperative Agreement
Category of Funding Activity: Health
Category Explanation:
Expected Number of Awards: 5
Assistance Listings: 93.315 — Rare Disorders: Research, Surveillance, Health Promotion, and Education
Cost Sharing or Matching Requirement: No
Version: Synopsis 7
Posted Date: Dec 19, 2014
Last Updated Date: Feb 06, 2020
Original Closing Date for Applications: Mar 03, 2015 Key Dates

Letter of Intent Due Date: 02/03/2015
Application Due Date: 03/03/2015
On-time submission requires that electronic applications be error-free and made available to CDC for
processing from eRA Commons on or before the deadline date. Applications must be submitted to and
validated successfully by Grants.gov/eRA Commons no later than 5:00 PM U.S. Eastern Time.

Current Closing Date for Applications: Feb 20, 2020 Key DatesLetter of Intent Due Date: 02/03/2015Application Due Date: 03/03/2015On-time submission requires that electronic applications be error-free and made available to CDC forprocessing from eRA Commons on or before the deadline date. Applications must be submitted to andvalidated successfully by Grants.gov/eRA Commons no later than 5:00 PM U.S. Eastern Time.
Archive Date: Mar 21, 2020
Estimated Total Program Funding: $4,250,000
Award Ceiling: $350,000
Award Floor: $0

Eligibility

Eligible Applicants: Others (see text field entitled “Additional Information on Eligibility” for clarification)
Additional Information on Eligibility: Eligibility Information1. Eligible ApplicantsEligibility Category: State governmentsCounty governmentsCity or township governmentsSpecial district governmentsIndependent school districtsPublic and State controlled institutions of higher educationNative American tribal governments (Federally recognized)Public housing authorities/Indian housing authoritiesNative American tribal organizations (other than Federally recognized tribalgovernments)Nonprofits having a 501(c)(3) status with the IRS, other than institutions ofhigher educationNonprofits without 501(c)(3) status with the IRS, other than institutions ofhigher educationPrivate institutions of higher educationFor profit organizations other than small businessesSmall businessesThe following types of Higher Education Institutions are always encouraged to apply for CDC support asPublic or Private Institutions of Higher Education:Hispanic-serving InstitutionsHistorically Black Colleges and Universities (HBCUs)Tribally Controlled Colleges and Universities (TCCUs)Alaska Native and Native Hawaiian Serving InstitutionsNonprofits Other Than Institutions of Higher Education:Nonprofits (Other than Institutions of Higher Education)Governments:Eligible Agencies of the Federal GovernmentU.S. Territory or PossessionOther:Native American tribal organizations (other than Federally recognized tribalgovernments)Faith-based or Community-based Organizations12 of 41Regional OrganizationsBona Fide Agents: a Bona Fide Agent is an agency/organization identified bythe state as eligible to submit an application under the state eligibility in lieu ofa state application. If applying as a bona fide agent of a state or localgovernment, a legal, binding agreement from the state or local government asdocumentation of the status is required. Attach with "Other AttachmentForms" when submitting via www.grants.gov.2. Foreign OrganizationsForeign Organizations are not eligible to apply.Foreign components of U.S. Organizations are not eligible to apply.For this announcement, applicants may not include collaborators or consultants from foreign institutions. Allapplicable federal laws and policies apply.3. Special Eligibility RequirementsIf your application is incomplete or non-responsive to the special eligibility requirements listed inthis section, it will not enter into the review process.Component CApplicants must demonstrate that their clinic capacity is greater than or equal to 30 individualfragile X syndrome patients per year.

Additional Information

Agency Name: Centers for Disease Control and Prevention – ERA
Description:

FOA PurposeThe purpose of this FOA is to contribute to the understanding of the natural history of fragile Xsyndrome (FXS) across the lifespan, explore effective strategies to increase participation in thelongitudinal database for minority, underserved, and adults living with FXS, and test approaches tomeasure cognitive and behavioral function in the FXS population.

Link to Additional Information:
Grantor Contact Information: If you have difficulty accessing the full announcement electronically, please contact:

Sharon Cassell

E-mail Address scassell@cdc.gov

Office Phone (770-488-2703)
Email:scassell@cdc.gov

Version History

Version Modification Description Updated Date
Updated the Due date and application package. Feb 06, 2020
Amend Dec 19, 2014
Amend Dec 19, 2014
Amend Dec 19, 2014
Amendment 1 revised to add questions and answers. Dec 19, 2014
Amendment 1 to add questions and answers from potential applicants. Feb 12, 2015
Feb 11, 2015

DISPLAYING: Synopsis 7

General Information

Document Type: Grants Notice
Funding Opportunity Number: RFA-DD-15-003
Funding Opportunity Title: Using Longitudinal Data to Characterize the Natural History of Fragile X Syndrome to Improve Services and Outcomes
Opportunity Category: Discretionary
Opportunity Category Explanation:
Funding Instrument Type: Cooperative Agreement
Category of Funding Activity: Health
Category Explanation:
Expected Number of Awards: 5
Assistance Listings: 93.315 — Rare Disorders: Research, Surveillance, Health Promotion, and Education
Cost Sharing or Matching Requirement: No
Version: Synopsis 7
Posted Date: Dec 19, 2014
Last Updated Date: Feb 06, 2020
Original Closing Date for Applications: Mar 03, 2015 Key Dates

Letter of Intent Due Date: 02/03/2015
Application Due Date: 03/03/2015
On-time submission requires that electronic applications be error-free and made available to CDC for
processing from eRA Commons on or before the deadline date. Applications must be submitted to and
validated successfully by Grants.gov/eRA Commons no later than 5:00 PM U.S. Eastern Time.

Current Closing Date for Applications: Feb 20, 2020 Key DatesLetter of Intent Due Date: 02/03/2015Application Due Date: 03/03/2015On-time submission requires that electronic applications be error-free and made available to CDC forprocessing from eRA Commons on or before the deadline date. Applications must be submitted to andvalidated successfully by Grants.gov/eRA Commons no later than 5:00 PM U.S. Eastern Time.
Archive Date: Mar 21, 2020
Estimated Total Program Funding: $4,250,000
Award Ceiling: $350,000
Award Floor: $0

Eligibility

Eligible Applicants: Others (see text field entitled “Additional Information on Eligibility” for clarification)
Additional Information on Eligibility: Eligibility Information1. Eligible ApplicantsEligibility Category: State governmentsCounty governmentsCity or township governmentsSpecial district governmentsIndependent school districtsPublic and State controlled institutions of higher educationNative American tribal governments (Federally recognized)Public housing authorities/Indian housing authoritiesNative American tribal organizations (other than Federally recognized tribalgovernments)Nonprofits having a 501(c)(3) status with the IRS, other than institutions ofhigher educationNonprofits without 501(c)(3) status with the IRS, other than institutions ofhigher educationPrivate institutions of higher educationFor profit organizations other than small businessesSmall businessesThe following types of Higher Education Institutions are always encouraged to apply for CDC support asPublic or Private Institutions of Higher Education:Hispanic-serving InstitutionsHistorically Black Colleges and Universities (HBCUs)Tribally Controlled Colleges and Universities (TCCUs)Alaska Native and Native Hawaiian Serving InstitutionsNonprofits Other Than Institutions of Higher Education:Nonprofits (Other than Institutions of Higher Education)Governments:Eligible Agencies of the Federal GovernmentU.S. Territory or PossessionOther:Native American tribal organizations (other than Federally recognized tribalgovernments)Faith-based or Community-based Organizations12 of 41Regional OrganizationsBona Fide Agents: a Bona Fide Agent is an agency/organization identified bythe state as eligible to submit an application under the state eligibility in lieu ofa state application. If applying as a bona fide agent of a state or localgovernment, a legal, binding agreement from the state or local government asdocumentation of the status is required. Attach with "Other AttachmentForms" when submitting via www.grants.gov.2. Foreign OrganizationsForeign Organizations are not eligible to apply.Foreign components of U.S. Organizations are not eligible to apply.For this announcement, applicants may not include collaborators or consultants from foreign institutions. Allapplicable federal laws and policies apply.3. Special Eligibility RequirementsIf your application is incomplete or non-responsive to the special eligibility requirements listed inthis section, it will not enter into the review process.Component CApplicants must demonstrate that their clinic capacity is greater than or equal to 30 individualfragile X syndrome patients per year.

Additional Information

Agency Name: Centers for Disease Control and Prevention – ERA
Description:

FOA PurposeThe purpose of this FOA is to contribute to the understanding of the natural history of fragile Xsyndrome (FXS) across the lifespan, explore effective strategies to increase participation in thelongitudinal database for minority, underserved, and adults living with FXS, and test approaches tomeasure cognitive and behavioral function in the FXS population.

Link to Additional Information:
Grantor Contact Information: If you have difficulty accessing the full announcement electronically, please contact:

Sharon Cassell

E-mail Address scassell@cdc.gov

Office Phone (770-488-2703)
Email:scassell@cdc.gov

DISPLAYING: Synopsis 6

General Information

Document Type: Grants Notice
Funding Opportunity Number: RFA-DD-15-003
Funding Opportunity Title: Using Longitudinal Data to Characterize the Natural History of Fragile X Syndrome to Improve Services and Outcomes
Opportunity Category: Discretionary
Opportunity Category Explanation:
Funding Instrument Type: Cooperative Agreement
Category of Funding Activity: Health
Category Explanation:
Expected Number of Awards: 5
Assistance Listings: 93.315 — Rare Disorders: Research, Surveillance, Health Promotion, and Education
Cost Sharing or Matching Requirement: No
Version: Synopsis 6
Posted Date: Dec 19, 2014
Last Updated Date: Feb 05, 2020
Original Closing Date for Applications:
Current Closing Date for Applications: Feb 20, 2020 Key DatesLetter of Intent Due Date: 02/03/2015Application Due Date: 03/03/2015On-time submission requires that electronic applications be error-free and made available to CDC forprocessing from eRA Commons on or before the deadline date. Applications must be submitted to andvalidated successfully by Grants.gov/eRA Commons no later than 5:00 PM U.S. Eastern Time.
Archive Date: Mar 21, 2020
Estimated Total Program Funding: $4,250,000
Award Ceiling: $350,000
Award Floor: $0

Eligibility

Eligible Applicants: Others (see text field entitled “Additional Information on Eligibility” for clarification)
Additional Information on Eligibility: Eligibility Information1. Eligible ApplicantsEligibility Category: State governmentsCounty governmentsCity or township governmentsSpecial district governmentsIndependent school districtsPublic and State controlled institutions of higher educationNative American tribal governments (Federally recognized)Public housing authorities/Indian housing authoritiesNative American tribal organizations (other than Federally recognized tribalgovernments)Nonprofits having a 501(c)(3) status with the IRS, other than institutions ofhigher educationNonprofits without 501(c)(3) status with the IRS, other than institutions ofhigher educationPrivate institutions of higher educationFor profit organizations other than small businessesSmall businessesThe following types of Higher Education Institutions are always encouraged to apply for CDC support asPublic or Private Institutions of Higher Education:Hispanic-serving InstitutionsHistorically Black Colleges and Universities (HBCUs)Tribally Controlled Colleges and Universities (TCCUs)Alaska Native and Native Hawaiian Serving InstitutionsNonprofits Other Than Institutions of Higher Education:Nonprofits (Other than Institutions of Higher Education)Governments:Eligible Agencies of the Federal GovernmentU.S. Territory or PossessionOther:Native American tribal organizations (other than Federally recognized tribalgovernments)Faith-based or Community-based Organizations12 of 41Regional OrganizationsBona Fide Agents: a Bona Fide Agent is an agency/organization identified bythe state as eligible to submit an application under the state eligibility in lieu ofa state application. If applying as a bona fide agent of a state or localgovernment, a legal, binding agreement from the state or local government asdocumentation of the status is required. Attach with "Other AttachmentForms" when submitting via www.grants.gov.2. Foreign OrganizationsForeign Organizations are not eligible to apply.Foreign components of U.S. Organizations are not eligible to apply.For this announcement, applicants may not include collaborators or consultants from foreign institutions. Allapplicable federal laws and policies apply.3. Special Eligibility RequirementsIf your application is incomplete or non-responsive to the special eligibility requirements listed inthis section, it will not enter into the review process.Component CApplicants must demonstrate that their clinic capacity is greater than or equal to 30 individualfragile X syndrome patients per year.

Additional Information

Agency Name: Centers for Disease Control and Prevention – ERA
Description:

FOA PurposeThe purpose of this FOA is to contribute to the understanding of the natural history of fragile Xsyndrome (FXS) across the lifespan, explore effective strategies to increase participation in thelongitudinal database for minority, underserved, and adults living with FXS, and test approaches tomeasure cognitive and behavioral function in the FXS population.

Link to Additional Information:
Grantor Contact Information: If you have difficulty accessing the full announcement electronically, please contact:

Sharon Cassell

E-mail Address scassell@cdc.gov

Office Phone (770-488-2703)
Email:scassell@cdc.gov

DISPLAYING: Synopsis 5

General Information

Document Type: Grants Notice
Funding Opportunity Number: RFA-DD-15-003
Funding Opportunity Title: Using Longitudinal Data to Characterize the Natural History of Fragile X Syndrome to Improve Services and Outcomes
Opportunity Category: Discretionary
Opportunity Category Explanation:
Funding Instrument Type: Cooperative Agreement
Category of Funding Activity: Health
Category Explanation:
Expected Number of Awards: 5
Assistance Listings: 93.315 — Rare Disorders: Research, Surveillance, Health Promotion, and Education
Cost Sharing or Matching Requirement: No
Version: Synopsis 5
Posted Date: Dec 19, 2014
Last Updated Date: Feb 05, 2020
Original Closing Date for Applications:
Current Closing Date for Applications: Feb 20, 2020 Key DatesLetter of Intent Due Date: 02/03/2015Application Due Date: 03/03/2015On-time submission requires that electronic applications be error-free and made available to CDC forprocessing from eRA Commons on or before the deadline date. Applications must be submitted to andvalidated successfully by Grants.gov/eRA Commons no later than 5:00 PM U.S. Eastern Time.
Archive Date: Mar 21, 2020
Estimated Total Program Funding: $4,250,000
Award Ceiling: $350,000
Award Floor: $0

Eligibility

Eligible Applicants: Others (see text field entitled “Additional Information on Eligibility” for clarification)
Additional Information on Eligibility: Eligibility Information1. Eligible ApplicantsEligibility Category: State governmentsCounty governmentsCity or township governmentsSpecial district governmentsIndependent school districtsPublic and State controlled institutions of higher educationNative American tribal governments (Federally recognized)Public housing authorities/Indian housing authoritiesNative American tribal organizations (other than Federally recognized tribalgovernments)Nonprofits having a 501(c)(3) status with the IRS, other than institutions ofhigher educationNonprofits without 501(c)(3) status with the IRS, other than institutions ofhigher educationPrivate institutions of higher educationFor profit organizations other than small businessesSmall businessesThe following types of Higher Education Institutions are always encouraged to apply for CDC support asPublic or Private Institutions of Higher Education:Hispanic-serving InstitutionsHistorically Black Colleges and Universities (HBCUs)Tribally Controlled Colleges and Universities (TCCUs)Alaska Native and Native Hawaiian Serving InstitutionsNonprofits Other Than Institutions of Higher Education:Nonprofits (Other than Institutions of Higher Education)Governments:Eligible Agencies of the Federal GovernmentU.S. Territory or PossessionOther:Native American tribal organizations (other than Federally recognized tribalgovernments)Faith-based or Community-based Organizations12 of 41Regional OrganizationsBona Fide Agents: a Bona Fide Agent is an agency/organization identified bythe state as eligible to submit an application under the state eligibility in lieu ofa state application. If applying as a bona fide agent of a state or localgovernment, a legal, binding agreement from the state or local government asdocumentation of the status is required. Attach with "Other AttachmentForms" when submitting via www.grants.gov.2. Foreign OrganizationsForeign Organizations are not eligible to apply.Foreign components of U.S. Organizations are not eligible to apply.For this announcement, applicants may not include collaborators or consultants from foreign institutions. Allapplicable federal laws and policies apply.3. Special Eligibility RequirementsIf your application is incomplete or non-responsive to the special eligibility requirements listed inthis section, it will not enter into the review process.Component CApplicants must demonstrate that their clinic capacity is greater than or equal to 30 individualfragile X syndrome patients per year.

Additional Information

Agency Name: Centers for Disease Control and Prevention – ERA
Description:

FOA PurposeThe purpose of this FOA is to contribute to the understanding of the natural history of fragile Xsyndrome (FXS) across the lifespan, explore effective strategies to increase participation in thelongitudinal database for minority, underserved, and adults living with FXS, and test approaches tomeasure cognitive and behavioral function in the FXS population.

Link to Additional Information:
Grantor Contact Information: If you have difficulty accessing the full announcement electronically, please contact:

Sharon Cassell

E-mail Address scassell@cdc.gov

Office Phone (770-488-2832)
Email:scassell@cdc.gov

DISPLAYING: Synopsis 4

General Information

Document Type: Grants Notice
Funding Opportunity Number: RFA-DD-15-003
Funding Opportunity Title: Using Longitudinal Data to Characterize the Natural History of Fragile X Syndrome to Improve Services and Outcomes
Opportunity Category: Discretionary
Opportunity Category Explanation:
Funding Instrument Type: Cooperative Agreement
Category of Funding Activity: Health
Category Explanation:
Expected Number of Awards: 5
Assistance Listings: 93.315 — Rare Disorders: Research, Surveillance, Health Promotion, and Education
Cost Sharing or Matching Requirement: No
Version: Synopsis 4
Posted Date: Dec 19, 2014
Last Updated Date: Feb 05, 2020
Original Closing Date for Applications:
Current Closing Date for Applications: Feb 20, 2020 Key DatesLetter of Intent Due Date: 02/03/2015Application Due Date: 03/03/2015On-time submission requires that electronic applications be error-free and made available to CDC forprocessing from eRA Commons on or before the deadline date. Applications must be submitted to andvalidated successfully by Grants.gov/eRA Commons no later than 5:00 PM U.S. Eastern Time.
Archive Date: Mar 21, 2020
Estimated Total Program Funding: $4,250,000
Award Ceiling: $350,000
Award Floor: $0

Eligibility

Eligible Applicants: Others (see text field entitled “Additional Information on Eligibility” for clarification)
Additional Information on Eligibility: Eligibility Information1. Eligible ApplicantsEligibility Category: State governmentsCounty governmentsCity or township governmentsSpecial district governmentsIndependent school districtsPublic and State controlled institutions of higher educationNative American tribal governments (Federally recognized)Public housing authorities/Indian housing authoritiesNative American tribal organizations (other than Federally recognized tribalgovernments)Nonprofits having a 501(c)(3) status with the IRS, other than institutions ofhigher educationNonprofits without 501(c)(3) status with the IRS, other than institutions ofhigher educationPrivate institutions of higher educationFor profit organizations other than small businessesSmall businessesThe following types of Higher Education Institutions are always encouraged to apply for CDC support asPublic or Private Institutions of Higher Education:Hispanic-serving InstitutionsHistorically Black Colleges and Universities (HBCUs)Tribally Controlled Colleges and Universities (TCCUs)Alaska Native and Native Hawaiian Serving InstitutionsNonprofits Other Than Institutions of Higher Education:Nonprofits (Other than Institutions of Higher Education)Governments:Eligible Agencies of the Federal GovernmentU.S. Territory or PossessionOther:Native American tribal organizations (other than Federally recognized tribalgovernments)Faith-based or Community-based Organizations12 of 41Regional OrganizationsBona Fide Agents: a Bona Fide Agent is an agency/organization identified bythe state as eligible to submit an application under the state eligibility in lieu ofa state application. If applying as a bona fide agent of a state or localgovernment, a legal, binding agreement from the state or local government asdocumentation of the status is required. Attach with "Other AttachmentForms" when submitting via www.grants.gov.2. Foreign OrganizationsForeign Organizations are not eligible to apply.Foreign components of U.S. Organizations are not eligible to apply.For this announcement, applicants may not include collaborators or consultants from foreign institutions. Allapplicable federal laws and policies apply.3. Special Eligibility RequirementsIf your application is incomplete or non-responsive to the special eligibility requirements listed inthis section, it will not enter into the review process.Component CApplicants must demonstrate that their clinic capacity is greater than or equal to 30 individualfragile X syndrome patients per year.

Additional Information

Agency Name: Centers for Disease Control and Prevention – ERA
Description:

FOA PurposeThe purpose of this FOA is to contribute to the understanding of the natural history of fragile Xsyndrome (FXS) across the lifespan, explore effective strategies to increase participation in thelongitudinal database for minority, underserved, and adults living with FXS, and test approaches tomeasure cognitive and behavioral function in the FXS population.

Link to Additional Information:
Grantor Contact Information: If you have difficulty accessing the full announcement electronically, please contact:

Sharon Cassel

E-mail Address scassell@cdc.gov

Office Phone (770-488-2832)
Email:scassell@cdc.gov

DISPLAYING: Synopsis 3

General Information

Document Type: Grants Notice
Funding Opportunity Number: RFA-DD-15-003
Funding Opportunity Title: Using Longitudinal Data to Characterize the Natural History of Fragile X Syndrome to Improve Services and Outcomes
Opportunity Category: Discretionary
Opportunity Category Explanation:
Funding Instrument Type: Cooperative Agreement
Category of Funding Activity: Health
Category Explanation:
Expected Number of Awards: 5
Assistance Listings: 93.315 — Rare Disorders: Research, Surveillance, Health Promotion, and Education
Cost Sharing or Matching Requirement: No
Version: Synopsis 3
Posted Date: Dec 19, 2014
Last Updated Date: Feb 12, 2015
Original Closing Date for Applications:
Current Closing Date for Applications: Mar 03, 2015 Key Dates

Letter of Intent Due Date: 02/03/2015
Application Due Date: 03/03/2015
On-time submission requires that electronic applications be error-free and made available to CDC for
processing from eRA Commons on or before the deadline date. Applications must be submitted to and
validated successfully by Grants.gov/eRA Commons no later than 5:00 PM U.S. Eastern Time.

Archive Date: Apr 02, 2015
Estimated Total Program Funding: $4,250,000
Award Ceiling: $350,000
Award Floor: $0

Eligibility

Eligible Applicants: Others (see text field entitled “Additional Information on Eligibility” for clarification)
Additional Information on Eligibility: Eligibility Information
1. Eligible Applicants
Eligibility Category: State governments
County governments
City or township governments
Special district governments
Independent school districts
Public and State controlled institutions of higher education
Native American tribal governments (Federally recognized)
Public housing authorities/Indian housing authorities
Native American tribal organizations (other than Federally recognized tribal
governments)
Nonprofits having a 501(c)(3) status with the IRS, other than institutions of
higher education
Nonprofits without 501(c)(3) status with the IRS, other than institutions of
higher education
Private institutions of higher education
For profit organizations other than small businesses
Small businesses
The following types of Higher Education Institutions are always encouraged to apply for CDC support as
Public or Private Institutions of Higher Education:
Hispanic-serving Institutions
Historically Black Colleges and Universities (HBCUs)
Tribally Controlled Colleges and Universities (TCCUs)
Alaska Native and Native Hawaiian Serving Institutions
Nonprofits Other Than Institutions of Higher Education:
Nonprofits (Other than Institutions of Higher Education)
Governments:
Eligible Agencies of the Federal Government
U.S. Territory or Possession
Other:
Native American tribal organizations (other than Federally recognized tribal
governments)
Faith-based or Community-based Organizations
12 of 41
Regional Organizations
Bona Fide Agents: a Bona Fide Agent is an agency/organization identified by
the state as eligible to submit an application under the state eligibility in lieu of
a state application. If applying as a bona fide agent of a state or local
government, a legal, binding agreement from the state or local government as
documentation of the status is required. Attach with "Other Attachment
Forms" when submitting via www.grants.gov.
2. Foreign Organizations
Foreign Organizations are not eligible to apply.
Foreign components of U.S. Organizations are not eligible to apply.
For this announcement, applicants may not include collaborators or consultants from foreign institutions. All
applicable federal laws and policies apply.
3. Special Eligibility Requirements
If your application is incomplete or non-responsive to the special eligibility requirements listed in
this section, it will not enter into the review process.
Component C
Applicants must demonstrate that their clinic capacity is greater than or equal to 30 individual
fragile X syndrome patients per year.

Additional Information

Agency Name: Centers for Disease Control and Prevention – ERA
Description: FOA PurposeThe purpose of this FOA is to contribute to the understanding of the natural history of fragile Xsyndrome (FXS) across the lifespan, explore effective strategies to increase participation in thelongitudinal database for minority, underserved, and adults living with FXS, and test approaches tomeasure cognitive and behavioral function in the FXS population.
Link to Additional Information:
Grantor Contact Information: If you have difficulty accessing the full announcement electronically, please contact:

Roslyn Curington

E-mail Address zlp8@cdc.gov

Office Phone (770-488-2832)

Email:zlp8@cdc.gov

DISPLAYING: Synopsis 2

General Information

Document Type: Grants Notice
Funding Opportunity Number: RFA-DD-15-003
Funding Opportunity Title: Using Longitudinal Data to Characterize the Natural History of Fragile X Syndrome to Improve Services and Outcomes
Opportunity Category: Discretionary
Opportunity Category Explanation:
Funding Instrument Type: Cooperative Agreement
Category of Funding Activity: Health
Category Explanation:
Expected Number of Awards: 5
Assistance Listings: 93.315 — Rare Disorders: Research, Surveillance, Health Promotion, and Education
Cost Sharing or Matching Requirement: No
Version: Synopsis 2
Posted Date: Feb 12, 2015
Last Updated Date:
Original Closing Date for Applications:
Current Closing Date for Applications: Mar 03, 2015 Key Dates

Letter of Intent Due Date: 02/03/2015
Application Due Date: 03/03/2015
On-time submission requires that electronic applications be error-free and made available to CDC for
processing from eRA Commons on or before the deadline date. Applications must be submitted to and
validated successfully by Grants.gov/eRA Commons no later than 5:00 PM U.S. Eastern Time.

Archive Date: Apr 02, 2015
Estimated Total Program Funding: $4,250,000
Award Ceiling: $350,000
Award Floor: $0

Eligibility

Eligible Applicants: Others (see text field entitled “Additional Information on Eligibility” for clarification)
Additional Information on Eligibility: Eligibility Information
1. Eligible Applicants
Eligibility Category: State governments
County governments
City or township governments
Special district governments
Independent school districts
Public and State controlled institutions of higher education
Native American tribal governments (Federally recognized)
Public housing authorities/Indian housing authorities
Native American tribal organizations (other than Federally recognized tribal
governments)
Nonprofits having a 501(c)(3) status with the IRS, other than institutions of
higher education
Nonprofits without 501(c)(3) status with the IRS, other than institutions of
higher education
Private institutions of higher education
For profit organizations other than small businesses
Small businesses
The following types of Higher Education Institutions are always encouraged to apply for CDC support as
Public or Private Institutions of Higher Education:
Hispanic-serving Institutions
Historically Black Colleges and Universities (HBCUs)
Tribally Controlled Colleges and Universities (TCCUs)
Alaska Native and Native Hawaiian Serving Institutions
Nonprofits Other Than Institutions of Higher Education:
Nonprofits (Other than Institutions of Higher Education)
Governments:
Eligible Agencies of the Federal Government
U.S. Territory or Possession
Other:
Native American tribal organizations (other than Federally recognized tribal
governments)
Faith-based or Community-based Organizations
12 of 41
Regional Organizations
Bona Fide Agents: a Bona Fide Agent is an agency/organization identified by
the state as eligible to submit an application under the state eligibility in lieu of
a state application. If applying as a bona fide agent of a state or local
government, a legal, binding agreement from the state or local government as
documentation of the status is required. Attach with "Other Attachment
Forms" when submitting via www.grants.gov.
2. Foreign Organizations
Foreign Organizations are not eligible to apply.
Foreign components of U.S. Organizations are not eligible to apply.
For this announcement, applicants may not include collaborators or consultants from foreign institutions. All
applicable federal laws and policies apply.
3. Special Eligibility Requirements
If your application is incomplete or non-responsive to the special eligibility requirements listed in
this section, it will not enter into the review process.
Component C
Applicants must demonstrate that their clinic capacity is greater than or equal to 30 individual
fragile X syndrome patients per year.

Additional Information

Agency Name: Centers for Disease Control and Prevention – ERA
Description: FOA PurposeThe purpose of this FOA is to contribute to the understanding of the natural history of fragile Xsyndrome (FXS) across the lifespan, explore effective strategies to increase participation in thelongitudinal database for minority, underserved, and adults living with FXS, and test approaches tomeasure cognitive and behavioral function in the FXS population.
Link to Additional Information:
Grantor Contact Information: If you have difficulty accessing the full announcement electronically, please contact:

Roslyn Curington

E-mail Address zlp8@cdc.gov

Office Phone (770-488-2832)

Email:zlp8@cdc.gov

DISPLAYING: Synopsis 1

General Information

Document Type: Grants Notice
Funding Opportunity Number: RFA-DD-15-003
Funding Opportunity Title: Using Longitudinal Data to Characterize the Natural History of Fragile X Syndrome to Improve Services and Outcomes
Opportunity Category: Discretionary
Opportunity Category Explanation:
Funding Instrument Type: Cooperative Agreement
Category of Funding Activity: Health
Category Explanation:
Expected Number of Awards: 5
Assistance Listings: 93.315 — Rare Disorders: Research, Surveillance, Health Promotion, and Education
Cost Sharing or Matching Requirement: No
Version: Synopsis 1
Posted Date: Feb 11, 2015
Last Updated Date:
Original Closing Date for Applications:
Current Closing Date for Applications: Mar 03, 2015 Key Dates

Letter of Intent Due Date: 02/03/2015
Application Due Date: 03/03/2015
On-time submission requires that electronic applications be error-free and made available to CDC for
processing from eRA Commons on or before the deadline date. Applications must be submitted to and
validated successfully by Grants.gov/eRA Commons no later than 5:00 PM U.S. Eastern Time.

Archive Date: Apr 02, 2015
Estimated Total Program Funding: $4,250,000
Award Ceiling: $350,000
Award Floor: $0

Eligibility

Eligible Applicants: Others (see text field entitled “Additional Information on Eligibility” for clarification)
Additional Information on Eligibility: Eligibility Information
1. Eligible Applicants
Eligibility Category: State governments
County governments
City or township governments
Special district governments
Independent school districts
Public and State controlled institutions of higher education
Native American tribal governments (Federally recognized)
Public housing authorities/Indian housing authorities
Native American tribal organizations (other than Federally recognized tribal
governments)
Nonprofits having a 501(c)(3) status with the IRS, other than institutions of
higher education
Nonprofits without 501(c)(3) status with the IRS, other than institutions of
higher education
Private institutions of higher education
For profit organizations other than small businesses
Small businesses
The following types of Higher Education Institutions are always encouraged to apply for CDC support as
Public or Private Institutions of Higher Education:
Hispanic-serving Institutions
Historically Black Colleges and Universities (HBCUs)
Tribally Controlled Colleges and Universities (TCCUs)
Alaska Native and Native Hawaiian Serving Institutions
Nonprofits Other Than Institutions of Higher Education:
Nonprofits (Other than Institutions of Higher Education)
Governments:
Eligible Agencies of the Federal Government
U.S. Territory or Possession
Other:
Native American tribal organizations (other than Federally recognized tribal
governments)
Faith-based or Community-based Organizations
12 of 41
Regional Organizations
Bona Fide Agents: a Bona Fide Agent is an agency/organization identified by
the state as eligible to submit an application under the state eligibility in lieu of
a state application. If applying as a bona fide agent of a state or local
government, a legal, binding agreement from the state or local government as
documentation of the status is required. Attach with "Other Attachment
Forms" when submitting via www.grants.gov.
2. Foreign Organizations
Foreign Organizations are not eligible to apply.
Foreign components of U.S. Organizations are not eligible to apply.
For this announcement, applicants may not include collaborators or consultants from foreign institutions. All
applicable federal laws and policies apply.
3. Special Eligibility Requirements
If your application is incomplete or non-responsive to the special eligibility requirements listed in
this section, it will not enter into the review process.
Component C
Applicants must demonstrate that their clinic capacity is greater than or equal to 30 individual
fragile X syndrome patients per year.

Additional Information

Agency Name: Centers for Disease Control and Prevention – ERA
Description: FOA Purpose
The purpose of this FOA is to contribute to the understanding of the natural history of fragile X
syndrome (FXS) across the lifespan, explore effective strategies to increase participation in the
longitudinal database for minority, underserved, and adults living with FXS, and test approaches to
measure cognitive and behavioral function in the FXS population.
Link to Additional Information:
Grantor Contact Information: If you have difficulty accessing the full announcement electronically, please contact:

Roslyn Curington

E-mail Address zlp8@cdc.gov

Office Phone (770-488-2832)

Email:zlp8@cdc.gov

Folder 270661 Full Announcement-1 -> DD15-003 NOFO.pdf

Packages

Agency Contact Information: Sharon Cassell
E-mail Address scassell@cdc.gov
Office Phone (770-488-2703)
Email: scassell@cdc.gov
Who Can Apply: Organization Applicants

Assistance Listing Number Competition ID Competition Title Opportunity Package ID Opening Date Closing Date Actions
93.315 NCBDDD-R NCBDDD-R PKG00210955 Dec 19, 2014 Feb 20, 2020 View

Package 1

Mandatory forms

270661 RR_SF424_2_0-2.0.pdf

270661 RR_Budget_1_4-1.4.pdf

270661 PHS398_ResearchPlan_4_0-4.0.pdf

270661 PHS398_CoverPageSupplement_4_0-4.0.pdf

270661 RR_OtherProjectInfo_1_4-1.4.pdf

270661 PerformanceSite_2_0-2.0.pdf

270661 RR_KeyPersonExpanded_2_0-2.0.pdf

Optional forms

270661 RR_SubawardBudget30_1_4-1.4.pdf

2025-07-09T21:22:02-05:00

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