The Health Resources and Services Administration (HRSA) is offering funding for the Hereditary Hemorrhagic Telangiectasia (HHT) Center grant program. This vital initiative aims to significantly reduce morbidity and mortality associated with Hereditary Hemorrhagic Telangiectasia, a rare and complex disease. Through this grant, HRSA seeks to establish a national center dedicated to achieving two primary objectives. Firstly, it will expand critical access to and enhance the coordination of care services for individuals living with HHT, ensuring they receive comprehensive support. Secondly, the program will fund the development of a secure, de-identified, and aggregate data collection registry. This registry is crucial for gathering valuable insights, fostering a deeper understanding of HHT, and ultimately improving treatment outcomes for patients nationwide.
Opportunity ID: 338789
General Information
| Document Type: | Grants Notice |
| Funding Opportunity Number: | HRSA-22-145 |
| Funding Opportunity Title: | Hereditary Hemorrhagic Telangiectasia (HHT) Center |
| Opportunity Category: | Discretionary |
| Opportunity Category Explanation: | – |
| Funding Instrument Type: | Cooperative Agreement |
| Category of Funding Activity: | Health |
| Category Explanation: | https://grants.hrsa.gov/2010/Web2External/Interface/FundingCycle/ExternalView.aspx?fCycleID=7a5df7f7-eb80-4ffe-8a6d-f837e47bafa2 |
| Expected Number of Awards: | 1 |
| Assistance Listings: | 93.110 — Maternal and Child Health Federal Consolidated Programs |
| Cost Sharing or Matching Requirement: | No |
| Version: | Synopsis 1 |
| Posted Date: | Mar 18, 2022 |
| Last Updated Date: | Mar 18, 2022 |
| Original Closing Date for Applications: | May 17, 2022 |
| Current Closing Date for Applications: | May 17, 2022 |
| Archive Date: | – |
| Estimated Total Program Funding: | $2,000,000 |
| Award Ceiling: | $2,000,000 |
| Award Floor: | $0 |
Eligibility
| Eligible Applicants: | Independent school districts Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education County governments Native American tribal organizations (other than Federally recognized tribal governments) Others (see text field entitled “Additional Information on Eligibility” for clarification) City or township governments Native American tribal governments (Federally recognized) For profit organizations other than small businesses Small businesses State governments Special district governments |
| Additional Information on Eligibility: | Any domestic public or private entity, including an Indian tribe or tribal organization (as those terms are defined at 25 U.S.C. 5304 (formerly cited as 25 U.S.C. 450b)) is eligible to apply. See 42 CFR § 51a.3(a)). Domestic faith-based and community-based organizations are eligible to apply. |
Additional Information
| Agency Name: | Health Resources and Services Administration |
| Description: | The Health Resources and Services Administration (HRSA) is accepting applications for the fiscal year (FY) 2022 Hereditary Hemorrhagic Telangiectasia (HHT) Center. The purpose of the program is to reduce morbidity and mortality associated with hereditary hemorrhagic telangiectasia by funding a national center to: 1) expand access to and coordination of care for HHT patients; and 2) develop a de-identified, aggregate data collection registry to better understand this rare disease and treatment outcomes. |
| Link to Additional Information: | – |
| Grantor Contact Information: | If you have difficulty accessing the full announcement electronically, please contact:
Department of Health and Human Services, Health Resources and Services Administration
cnovoa@hrsa.gov Email:cnovoa@hrsa.gov |
Version History
| Version | Modification Description | Updated Date |
|---|---|---|
Related Documents
Folder 338789 Full Announcement-HRSA-22-145 -> MCHB HRSA-22-145 (UP4) HHT_Final.pdf
Packages
| Agency Contact Information: | Department of Health and Human Services, Health Resources and Services Administration cnovoa@hrsa.gov Email: cnovoa@hrsa.gov |
| Who Can Apply: | Organization Applicants |
| Assistance Listing Number | Competition ID | Competition Title | Opportunity Package ID | Opening Date | Closing Date | Actions |
|---|---|---|---|---|---|---|
| 93.110 | HRSA-22-145 | Hereditary Hemorrhagic Telangiectasia (HHT) Center | PKG00272658 | Mar 18, 2022 | May 17, 2022 | View |
Package 1
Mandatory forms
338789 SF424_4_0-4.0.pdf
338789 AttachmentForm_1_2-1.2.pdf
338789 PerformanceSite_4_0-4.0.pdf
338789 ProjectNarrativeAttachments_1_2-1.2.pdf
338789 GG_LobbyingForm-1.1.pdf
338789 BudgetNarrativeAttachments_1_2-1.2.pdf
338789 SF424A-1.0.pdf
338789 Key_Contacts_2_0-2.0.pdf
338789 Project_AbstractSummary_2_0-2.0.pdf
Optional forms
338789 SFLLL_2_0-2.0.pdf
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