The National Institutes of Health (NIH) is offering this grant through its INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE (INCLUDE) Project. This initiative aims to enhance the health and quality of life for individuals with Down syndrome. This specific funding opportunity is for a Down Syndrome Clinical Cohort Coordinating Center (DS-4C). The selected center will be responsible for the overall coordination and outreach of the new INCLUDE Project Down Syndrome Cohort Development Program, actively supporting the formation of new cohorts of people with Down syndrome. Furthermore, the DS-4C will curate metadata collected from these newly established cohorts. Applicants must include a Plan for Enhancing Diverse Perspectives (PEDP), as applications lacking this plan will be considered incomplete and withdrawn. This grant is for establishing the central hub for Down syndrome cohort development.
Opportunity ID: 350661
General Information
| Document Type: | Grants Notice |
| Funding Opportunity Number: | RFA-OD-24-005 |
| Funding Opportunity Title: | Down Syndrome Clinical Cohort Coordinating Center (DS-4C) for the INCLUDE Project (INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE) (U54 Clinical Trial Not Allowed) |
| Opportunity Category: | Discretionary |
| Opportunity Category Explanation: | – |
| Funding Instrument Type: | Cooperative Agreement |
| Category of Funding Activity: | Food and Nutrition Health Income Security and Social Services |
| Category Explanation: | – |
| Expected Number of Awards: | – |
| Assistance Listings: | 93.172 — Human Genome Research |
| Cost Sharing or Matching Requirement: | No |
| Version: | Synopsis 1 |
| Posted Date: | Oct 20, 2023 |
| Last Updated Date: | Oct 20, 2023 |
| Original Closing Date for Applications: | Jan 26, 2024 |
| Current Closing Date for Applications: | Jan 26, 2024 |
| Archive Date: | Mar 02, 2024 |
| Estimated Total Program Funding: | – |
| Award Ceiling: | – |
| Award Floor: | – |
Eligibility
| Eligible Applicants: | City or township governments Others (see text field entitled “Additional Information on Eligibility” for clarification) Independent school districts For profit organizations other than small businesses State governments County governments Public housing authorities/Indian housing authorities Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education Native American tribal organizations (other than Federally recognized tribal governments) Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education Private institutions of higher education Small businesses Special district governments Public and State controlled institutions of higher education Native American tribal governments (Federally recognized) |
| Additional Information on Eligibility: | Other Eligible Applicants include the following: Alaska Native and Native Hawaiian Serving Institutions; Asian American Native American Pacific Islander Serving Institutions (AANAPISISs); Eligible Agencies of the Federal Government; Faith-based or Community-based Organizations; Hispanic-serving Institutions; Historically Black Colleges and Universities (HBCUs); Indian/Native American Tribal Governments (Other than Federally Recognized); Non-domestic (non-U.S.) Entities (Foreign Organizations); Regional Organizations; Tribally Controlled Colleges and Universities (TCCUs) ; U.S. Territory or Possession; Non-domestic (non-U.S.) Entities (Foreign Institutions) are not eligible to apply. Non-domestic (non-U.S.) components of U.S. Organizations are eligible to apply. Foreign components, as defined in the NIH Grants Policy Statement, are allowed. |
Additional Information
| Agency Name: | National Institutes of Health |
| Description: | The NIH INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE (INCLUDE) Project seeks to improve health and quality-of-life for individuals with Down syndrome. This Notice of Funding Opportunity (NOFO) is soliciting applications for a Down Syndrome Clinical Cohort Coordinating Center (DS-4C) that will be responsible for the overall coordination and outreach for the new INCLUDE Project Down Syndrome Cohort Development Program (DS-CDP), support development of new cohorts of people with Down syndrome, and curate the metadata from the new cohorts. A companion NOFO (RFA-OD-23-052) will support the Cohort Research Sites. A related NOFO (RFA-OD-23-054) will support a Federated Biobanking Resource for the INCLUDE Project. This NOFO requires a Plan for Enhancing Diverse Perspectives (PEDP), which will be assessed as part of the scientific and technical peer review evaluation. Applications that fail to include a PEDP will be considered incomplete and will be withdrawn. Applicants are strongly encouraged to read the NOFO instructions carefully and view the available PEDP guidance material. |
| Link to Additional Information: | https://grants.nih.gov/grants/guide/rfa-files/RFA-OD-24-005.html |
| Grantor Contact Information: | If you have difficulty accessing the full announcement electronically, please contact:
NIH Grants Information
grantsinfo@nih.gov Email:grantsinfo@nih.gov |
Version History
| Version | Modification Description | Updated Date |
|---|---|---|
Related Documents
Folder 350661 Full Announcement-RFA-OD-24-005 -> RFA-OD-24-005-Full-Announcement.pdf
Packages
| Agency Contact Information: | NIH Grants Information grantsinfo@nih.gov Email: grantsinfo@nih.gov |
| Who Can Apply: | Organization Applicants |
| Assistance Listing Number | Competition ID | Competition Title | Opportunity Package ID | Opening Date | Closing Date | Actions |
|---|---|---|---|---|---|---|
| FORMS-H | Use for due dates on or after January 25, 2023 | PKG00283577 | Dec 26, 2023 | Jan 26, 2024 | View |
Package 1
Mandatory forms
350661 RR_SF424_5_0-5.0.pdf
350661 PHS398_CoverPageSupplement_5_0-5.0.pdf
350661 RR_OtherProjectInfo_1_4-1.4.pdf
350661 PerformanceSite_4_0-4.0.pdf
350661 RR_KeyPersonExpanded_4_0-4.0.pdf
350661 PHS398_ResearchPlan_5_0-5.0.pdf
350661 PHSHumanSubjectsAndClinicalTrialsInfo_3_0-3.0.pdf
Optional forms
350661 PHS_Additional_IndirectCosts_2_0-2.0.pdf
350661 PHS_AssignmentRequestForm_3_0-3.0.pdf
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