This CDC grant is for establishing surveillance of Persistent Tic Disorders (PTD), including Tourette Syndrome (TS), in children and adolescents. Its purpose is to document the public health burden and outcomes, generating data for education and outreach to improve affected individuals’ well-being. Applicants must have capacity to identify PTD/TS populations, collect/analyze survey data, and disseminate findings. Recipients will collaborate with CDC and other awardees to define priority measures, standardize protocols, share de-identified data, and jointly analyze/disseminate multi-site results.
Opportunity ID: 349660
General Information
| Document Type: | Grants Notice |
| Funding Opportunity Number: | CDC-RFA-DD-24-0083 |
| Funding Opportunity Title: | Documenting outcomes associated with Persistent Tic Disorders (including Tourette Syndrome) in Children, Adolescents, and Young Adults through Surveillance |
| Opportunity Category: | Discretionary |
| Opportunity Category Explanation: | – |
| Funding Instrument Type: | Cooperative Agreement |
| Category of Funding Activity: | Health |
| Category Explanation: | – |
| Expected Number of Awards: | 3 |
| Assistance Listings: | 93.073 — Birth Defects and Developmental Disabilities – Prevention and Surveillance |
| Cost Sharing or Matching Requirement: | No |
| Version: | Synopsis 1 |
| Posted Date: | Feb 15, 2024 |
| Last Updated Date: | Feb 15, 2024 |
| Original Closing Date for Applications: | Apr 15, 2024 Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date. |
| Current Closing Date for Applications: | Apr 15, 2024 Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date. |
| Archive Date: | May 16, 2024 |
| Estimated Total Program Funding: | $3,750,000 |
| Award Ceiling: | $750,000 |
| Award Floor: | $150,000 |
Eligibility
| Eligible Applicants: | Public and State controlled institutions of higher education Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education City or township governments County governments Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education Special district governments State governments Independent school districts Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled “Additional Information on Eligibility” Native American tribal governments (Federally recognized) Private institutions of higher education Small businesses For profit organizations other than small businesses |
| Additional Information on Eligibility: | The applicant must provide evidence of access to clinic-based samples of children, adolescents, and young adults (ages 6-24 years) with a current persistent tic disorder including Tourette Syndrome (PTD/TS) and the ability to collect data on this population.The applicant must include in the application a table of contents, project abstract, project narrative, (including work plan) budget narrative, letters of support, CVs/resumes, organizational charts, a copy of their indirect cost rate agreement, and a data management plan demonstrating secure handling and storage of data. Assurances should be provided that data will be kept on restricted and/or password-protected systems that only individuals working on the respective surveillance system can access. Failure to include these documents will cause the application to be deemed nonresponsive and not be passed on for further review.The award ceiling for this NOFO is $750,000. CDC will consider any application requesting an award higher than this amount as nonresponsive, and it will receive no further review. |
Additional Information
| Agency Name: | Centers for Disease Control – NCBDDD |
| Description: | Eligible applicants should have the infrastructure and capacity to identify, collect, and disseminate information on outcomes associated with persistent tic disorders (PTD) including Tourette syndrome (TS) among children, adolescents, and young adults. Specifically, this entails: 1) access to a population of children, adolescents, and young adults with PTD/TS; 2) expertise in identification of PTD/TS; and 3) capacity to collect and analyze survey data and summarize and disseminate findings.CDC proposes to allocate funds to implement a Notice of Funding Opportunity (NOFO), Surveillance of Public Health Burden of Persistent Tic Disorders including Tourette Syndrome in Children, Adolescents, and Young Adults. The purpose of the NOFO is to conduct surveillance of persistent tic disorders (PTD) including Tourette syndrome (TS) among children, adolescents, and young adults to: • Document the public health burden (i.e., outcomes) of these disorders • Generate data that can be used to inform education and outreach activities to improve the health and well-being of individuals with tic disorders and their families. Proposed activities for this NOFO include the following: • Collaborate with CDC and other NOFO recipients to identify measures for priority areas of burden including cost, healthcare transition, suicidality, and co-occurring disorders. • Collaborate with CDC and other recipients to determine a standard survey and surveillance protocol across sites and shared data approach. • Collect and share de-identified data with CDC. • Collaborate with CDC and other NOFO recipients to analyze, summarize, and disseminate multi-site findings. |
| Link to Additional Information: | – |
| Grantor Contact Information: | If you have difficulty accessing the full announcement electronically, please contact:
Mary Helen Witten
muw4@cdc.gov Email:muw4@cdc.gov |
Version History
| Version | Modification Description | Updated Date |
|---|---|---|
Related Documents
Folder 349660 Full Announcement-Full Announcement -> CDC-RFA-DD-24-0083.pdf
Folder 349660 Other Supporting Documents-Other Supporting Documents -> CDC-RFA-DD-24-0083_NOFO_Questions_and_Answers_April 12_2024_Final.pdf
Packages
| Agency Contact Information: | Mary Helen Witten muw4@cdc.gov Email: muw4@cdc.gov |
| Who Can Apply: | Organization Applicants |
| Assistance Listing Number | Competition ID | Competition Title | Opportunity Package ID | Opening Date | Closing Date | Actions |
|---|---|---|---|---|---|---|
| 93.073 | CDC-RFA-DD-24-0083 | Documenting outcomes associated with Persistent Tic Disorders (including Tourette Syndrome) in Children, Adolescents, and Young Adults through Surveillance | PKG00284911 | Feb 15, 2024 | Apr 15, 2024 | View |
Package 1
Mandatory forms
349660 SF424_4_0-4.0.pdf
349660 Project_AbstractSummary_2_0-2.0.pdf
349660 SFLLL_2_0-2.0.pdf
349660 SF424A-1.0.pdf
349660 BudgetNarrativeAttachments_1_2-1.2.pdf
349660 ProjectNarrativeAttachments_1_2-1.2.pdf
Optional forms
349660 OtherNarrativeAttachments_1_2-1.2.pdf
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