Opportunity ID: 361002
General Information
| Funding Opportunity Number | CDC-RFA-DD-26-0222 |
| Funding Opportunity Title | Long-term health outcomes of people living with spina bifida |
| Agency | Centers for Disease Control – NCBDDD |
| Document Type | synopsis |
| Version | 1 |
| Opportunity Category | Discretionary |
| Opportunity Category Explanation | Not specified |
| Funding Instrument Type | Cooperative Agreement |
| Category of Funding Activity | Health |
| Category Explanation | Not specified |
| Expected Number of Awards | 19 |
| Cost Sharing or Matching Requirement | No |
| Posted Date | Aug 26, 2026 12:00:00 AM EDT |
| Last Updated Date | Aug 26, 2026 09:56:47 AM EDT |
| Original Closing Date | Oct 26, 2026 12:00:00 AM EDT |
| Original Closing Date Notes | Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date. |
| Current Closing Date | Oct 26, 2026 12:00:00 AM EDT |
| Current Closing Date Notes | Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date. |
| Estimated Synopsis Date | Not specified |
| Estimated Application Due Date | Not specified |
| Estimated Award Date | Not specified |
| Estimated Project Start Date | Not specified |
| Archive Date | Nov 25, 2026 12:00:00 AM EST |
| Estimated Total Program Funding | 3,000,000 |
| Award Ceiling | 300,000 |
| Award Floor | 100,000 |
Assistance Listings
- 93.073 — Birth Defects and Developmental Disabilities – Prevention and Surveillance
Eligibility
| Eligible Applicants | Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education; Independent school districts; Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education; County governments; Public and State controlled institutions of higher education; For profit organizations other than small businesses; Native American tribal governments (Federally recognized); Special district governments; Small businesses; State governments; City or township governments; Private institutions of higher education |
Description
The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB
Additional Information
| Contact | Centers for Disease Control – NCBDDD |
| Contact Information | Stephanie Griswold eut6@cdc.gov |
| eut6@cdc.gov | |
| Email Description | eut6@cdc.gov |
| Phone | 7704882756 |
Additional information
Version History
Version history
| Opp hist id / Opportunity id | 361002 |
| Opp hist id / Revision | 0 |
| Opportunity id | 361002 |
| Revision | 0 |
| Opportunity number | CDC-RFA-DD-26-0222 |
| Opportunity title | Long-term health outcomes of People Living with Spina Bifida based on the National Spina Bifida Patient Registry |
| Owning agency code | HHS-CDC-NCBDDD |
| Opportunity category / Category | D |
| Opportunity category / Description | Discretionary |
| Forecast / Opp hist id / Opportunity id | 361002 |
| Forecast / Opp hist id / Revision | 0 |
| Forecast / Opportunity id | 361002 |
| Forecast / Revision | 0 |
| Forecast / Version | 1 |
| Forecast / Posting date | Dec 12, 2025 12:00:00 AM EST |
| Forecast / Archive date | Apr 15, 2026 12:00:00 AM EDT |
| Forecast / Forecast desc | The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB |
| Forecast / Cost sharing | No |
| Forecast / Number of awards | 19 |
| Forecast / Estimated funding | 2330000 |
| Forecast / Award ceiling | 488571 |
| Forecast / Award floor | 166428 |
| Forecast / Agency contact name | Stephanie Griswold |
| Forecast / Agency contact phone | 404-718-2623 |
| Forecast / Agency contact email | eut6@cdc.gov |
| Forecast / Agency contact email desc | eut6@cdc.gov |
| Forecast / Agency code | HHS-CDC-NCBDDD |
| Forecast / Est synopsis posting date | Jan 15, 2026 12:00:00 AM EST |
| Forecast / Est application response date | Mar 16, 2026 12:00:00 AM EDT |
| Forecast / Est application response date desc | Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date. |
| Forecast / Est award date | Aug 11, 2026 12:00:00 AM EDT |
| Forecast / Est project start date | Sep 01, 2026 12:00:00 AM EDT |
| Forecast / Fiscal year | 2026 |
| Forecast / Create time stamp | Dec 12, 2025 11:31:58 AM EST |
| Forecast / Action type | U |
| Forecast / Action date | Aug 17, 2026 05:14:40 PM EDT |
| Forecast / Created date | Dec 12, 2025 11:31:58 AM EST |
| Forecast / Last updated date | Dec 12, 2025 11:31:58 AM EST |
| Forecast / Agency details / Code | NCBDDD |
| Forecast / Agency details / Seed | HHS-CDC-NCBDDD |
| Forecast / Agency details / Agency name | Centers for Disease Control – NCBDDD |
| Forecast / Agency details / Agency code | HHS-CDC-NCBDDD |
| Forecast / Agency details / Top agency code | HHS |
| Forecast / Estimated funding formatted | 2,330,000 |
| Forecast / Award ceiling formatted | 488,571 |
| Forecast / Award floor formatted | 166,428 |
| Forecast / Applicant types 1 / Id | 12 |
| Forecast / Applicant types 1 / Description | Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education |
| Forecast / Applicant types 2 / Id | 22 |
| Forecast / Applicant types 2 / Description | For profit organizations other than small businesses |
| Forecast / Applicant types 3 / Id | 04 |
| Forecast / Applicant types 3 / Description | Special district governments |
| Forecast / Applicant types 4 / Id | 05 |
| Forecast / Applicant types 4 / Description | Independent school districts |
| Forecast / Applicant types 5 / Id | 07 |
| Forecast / Applicant types 5 / Description | Native American tribal governments (Federally recognized) |
| Forecast / Applicant types 6 / Id | 01 |
| Forecast / Applicant types 6 / Description | County governments |
| Forecast / Applicant types 7 / Id | 02 |
| Forecast / Applicant types 7 / Description | City or township governments |
| Forecast / Applicant types 8 / Id | 20 |
| Forecast / Applicant types 8 / Description | Private institutions of higher education |
| Forecast / Applicant types 9 / Id | 13 |
| Forecast / Applicant types 9 / Description | Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education |
| Forecast / Applicant types 10 / Id | 06 |
| Forecast / Applicant types 10 / Description | Public and State controlled institutions of higher education |
| Forecast / Applicant types 11 / Id | 23 |
| Forecast / Applicant types 11 / Description | Small businesses |
| Forecast / Applicant types 12 / Id | 00 |
| Forecast / Applicant types 12 / Description | State governments |
| Forecast / Funding instruments 1 / Id | CA |
| Forecast / Funding instruments 1 / Description | Cooperative Agreement |
| Forecast / Funding activity categories 1 / Id | HL |
| Forecast / Funding activity categories 1 / Description | Health |
| Forecast / Posting date str | 2025-12-12-00-00-00 |
| Forecast / Archive date str | 2026-04-15-00-00-00 |
| Forecast / Est synopsis posting date str | 2026-01-15-00-00-00 |
| Forecast / Est application response date str | 2026-03-16-00-00-00 |
| Forecast / Est award date str | 2026-08-11-00-00-00 |
| Forecast / Est project start date str | 2026-09-01-00-00-00 |
| Forecast / Create time stamp str | 2025-12-12-11-31-58 |
| Cfdas 1 / Id | 431594 |
| Cfdas 1 / Opportunity id | 361002 |
| Cfdas 1 / Revision | 2 |
| Cfdas 1 / Cfda number | 93.073 |
| Cfdas 1 / Program title | Birth Defects and Developmental Disabilities – Prevention and Surveillance |
| Synopsis modified fields | Not specified |
| Forecast modified fields | Not specified |
| Opp hist id / Opportunity id | 361002 |
| Opp hist id / Revision | 1 |
| Opportunity id | 361002 |
| Revision | 1 |
| Opportunity number | CDC-RFA-DD-26-0222 |
| Opportunity title | Long-term health outcomes of People Living with Spina Bifida based on the National Spina Bifida Patient Registry |
| Owning agency code | HHS-CDC-NCBDDD |
| Opportunity category / Category | D |
| Opportunity category / Description | Discretionary |
| Forecast / Opp hist id / Opportunity id | 361002 |
| Forecast / Opp hist id / Revision | 1 |
| Forecast / Opportunity id | 361002 |
| Forecast / Revision | 1 |
| Forecast / Version | 2 |
| Forecast / Posting date | Dec 12, 2025 12:00:00 AM EST |
| Forecast / Archive date | Nov 25, 2026 12:00:00 AM EST |
| Forecast / Forecast desc | The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB |
| Forecast / Cost sharing | No |
| Forecast / Number of awards | 19 |
| Forecast / Estimated funding | 3000000 |
| Forecast / Award ceiling | 300000 |
| Forecast / Award floor | 100000 |
| Forecast / Agency contact name | Stephanie Griswold |
| Forecast / Agency contact phone | 404-718-2623 |
| Forecast / Agency contact email | eut6@cdc.gov |
| Forecast / Agency contact email desc | eut6@cdc.gov |
| Forecast / Agency code | HHS-CDC-NCBDDD |
| Forecast / Est synopsis posting date | Aug 26, 2026 12:00:00 AM EDT |
| Forecast / Est application response date | Oct 26, 2026 12:00:00 AM EDT |
| Forecast / Est application response date desc | Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date. |
| Forecast / Est award date | Jan 15, 2027 12:00:00 AM EST |
| Forecast / Est project start date | Sep 01, 2027 12:00:00 AM EDT |
| Forecast / Fiscal year | 2026 |
| Forecast / Mod comments | This forecast has been modified to update the NOFO title and key dates.
This forecast has been modified to update the NOFO title from Long-term health outcomes of people living with spina bifida based on the National Spina Bifida Patient Registry to Long-term health outcomes of people living with spina bifida. The key dates have been also been updated; The new estimated NOFO publication date is 8/26/26. |
| Forecast / Create time stamp | Aug 17, 2026 05:14:40 PM EDT |
| Forecast / Action type | U |
| Forecast / Action date | Aug 17, 2026 05:14:41 PM EDT |
| Forecast / Created date | Dec 12, 2025 11:31:58 AM EST |
| Forecast / Last updated date | Aug 17, 2026 05:14:40 PM EDT |
| Forecast / Agency details / Code | NCBDDD |
| Forecast / Agency details / Seed | HHS-CDC-NCBDDD |
| Forecast / Agency details / Agency name | Centers for Disease Control – NCBDDD |
| Forecast / Agency details / Agency code | HHS-CDC-NCBDDD |
| Forecast / Agency details / Top agency code | HHS |
| Forecast / Estimated funding formatted | 3,000,000 |
| Forecast / Award ceiling formatted | 300,000 |
| Forecast / Award floor formatted | 100,000 |
| Forecast / Applicant types 1 / Id | 12 |
| Forecast / Applicant types 1 / Description | Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education |
| Forecast / Applicant types 2 / Id | 22 |
| Forecast / Applicant types 2 / Description | For profit organizations other than small businesses |
| Forecast / Applicant types 3 / Id | 04 |
| Forecast / Applicant types 3 / Description | Special district governments |
| Forecast / Applicant types 4 / Id | 05 |
| Forecast / Applicant types 4 / Description | Independent school districts |
| Forecast / Applicant types 5 / Id | 07 |
| Forecast / Applicant types 5 / Description | Native American tribal governments (Federally recognized) |
| Forecast / Applicant types 6 / Id | 01 |
| Forecast / Applicant types 6 / Description | County governments |
| Forecast / Applicant types 7 / Id | 02 |
| Forecast / Applicant types 7 / Description | City or township governments |
| Forecast / Applicant types 8 / Id | 20 |
| Forecast / Applicant types 8 / Description | Private institutions of higher education |
| Forecast / Applicant types 9 / Id | 13 |
| Forecast / Applicant types 9 / Description | Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education |
| Forecast / Applicant types 10 / Id | 06 |
| Forecast / Applicant types 10 / Description | Public and State controlled institutions of higher education |
| Forecast / Applicant types 11 / Id | 23 |
| Forecast / Applicant types 11 / Description | Small businesses |
| Forecast / Applicant types 12 / Id | 00 |
| Forecast / Applicant types 12 / Description | State governments |
| Forecast / Funding instruments 1 / Id | CA |
| Forecast / Funding instruments 1 / Description | Cooperative Agreement |
| Forecast / Funding activity categories 1 / Id | HL |
| Forecast / Funding activity categories 1 / Description | Health |
| Forecast / Posting date str | 2025-12-12-00-00-00 |
| Forecast / Archive date str | 2026-11-25-00-00-00 |
| Forecast / Est synopsis posting date str | 2026-08-26-00-00-00 |
| Forecast / Est application response date str | 2026-10-26-00-00-00 |
| Forecast / Est award date str | 2027-01-15-00-00-00 |
| Forecast / Est project start date str | 2027-09-01-00-00-00 |
| Forecast / Create time stamp str | 2026-08-17-17-14-40 |
| Cfdas 1 / Id | 431594 |
| Cfdas 1 / Opportunity id | 361002 |
| Cfdas 1 / Revision | 2 |
| Cfdas 1 / Cfda number | 93.073 |
| Cfdas 1 / Program title | Birth Defects and Developmental Disabilities – Prevention and Surveillance |
| Synopsis modified fields | Not specified |
| Forecast modified fields | revision; version; sendEmail; archiveDate; estimatedFunding; awardCeiling; awardFloor; estSynopsisPostingDate; estApplicationResponseDate; estAwardDate; estProjectStartDate; modComments; createTimeStamp |
| Opp hist id / Opportunity id | 361002 |
| Opp hist id / Revision | 3 |
| Opportunity id | 361002 |
| Revision | 3 |
| Opportunity number | CDC-RFA-DD-26-0222 |
| Opportunity title | Long-term health outcomes of people living with spina bifida |
| Owning agency code | HHS-CDC-NCBDDD |
| Opportunity category / Category | D |
| Opportunity category / Description | Discretionary |
| Modified comments | This forecast has been modified to update the NOFO title and key dates.
This forecast has been modified to update the NOFO title from Long-term health outcomes of people living with spina bifida based on the National Spina Bifida Patient Registry to Long-term health outcomes of people living with spina bifida. The key dates have been also been updated; The new estimated NOFO publication date is 8/26/26. |
| Forecast / Opp hist id / Opportunity id | 361002 |
| Forecast / Opp hist id / Revision | 3 |
| Forecast / Opportunity id | 361002 |
| Forecast / Revision | 3 |
| Forecast / Version | 3 |
| Forecast / Posting date | Dec 12, 2025 12:00:00 AM EST |
| Forecast / Archive date | Nov 25, 2026 12:00:00 AM EST |
| Forecast / Forecast desc | The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB |
| Forecast / Cost sharing | No |
| Forecast / Number of awards | 19 |
| Forecast / Estimated funding | 3000000 |
| Forecast / Award ceiling | 300000 |
| Forecast / Award floor | 100000 |
| Forecast / Agency contact name | Stephanie Griswold |
| Forecast / Agency contact phone | 404-718-2623 |
| Forecast / Agency contact email | eut6@cdc.gov |
| Forecast / Agency contact email desc | eut6@cdc.gov |
| Forecast / Agency code | HHS-CDC-NCBDDD |
| Forecast / Est synopsis posting date | Aug 26, 2026 12:00:00 AM EDT |
| Forecast / Est application response date | Oct 26, 2026 12:00:00 AM EDT |
| Forecast / Est application response date desc | Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date. |
| Forecast / Est award date | Jan 15, 2027 12:00:00 AM EST |
| Forecast / Est project start date | Sep 01, 2027 12:00:00 AM EDT |
| Forecast / Fiscal year | 2026 |
| Forecast / Mod comments | This forecast has been modified to update the NOFO title and key dates.
This forecast has been modified to update the NOFO title from Long-term health outcomes of people living with spina bifida based on the National Spina Bifida Patient Registry to Long-term health outcomes of people living with spina bifida. The key dates have been also been updated; The new estimated NOFO publication date is 8/26/26. |
| Forecast / Create time stamp | Aug 17, 2026 05:14:41 PM EDT |
| Forecast / Action type | U |
| Forecast / Action date | Aug 26, 2026 09:56:47 AM EDT |
| Forecast / Created date | Dec 12, 2025 11:31:58 AM EST |
| Forecast / Last updated date | Aug 17, 2026 05:14:41 PM EDT |
| Forecast / Agency details / Code | NCBDDD |
| Forecast / Agency details / Seed | HHS-CDC-NCBDDD |
| Forecast / Agency details / Agency name | Centers for Disease Control – NCBDDD |
| Forecast / Agency details / Agency code | HHS-CDC-NCBDDD |
| Forecast / Agency details / Top agency code | HHS |
| Forecast / Estimated funding formatted | 3,000,000 |
| Forecast / Award ceiling formatted | 300,000 |
| Forecast / Award floor formatted | 100,000 |
| Forecast / Applicant types 1 / Id | 12 |
| Forecast / Applicant types 1 / Description | Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education |
| Forecast / Applicant types 2 / Id | 22 |
| Forecast / Applicant types 2 / Description | For profit organizations other than small businesses |
| Forecast / Applicant types 3 / Id | 04 |
| Forecast / Applicant types 3 / Description | Special district governments |
| Forecast / Applicant types 4 / Id | 05 |
| Forecast / Applicant types 4 / Description | Independent school districts |
| Forecast / Applicant types 5 / Id | 07 |
| Forecast / Applicant types 5 / Description | Native American tribal governments (Federally recognized) |
| Forecast / Applicant types 6 / Id | 01 |
| Forecast / Applicant types 6 / Description | County governments |
| Forecast / Applicant types 7 / Id | 02 |
| Forecast / Applicant types 7 / Description | City or township governments |
| Forecast / Applicant types 8 / Id | 20 |
| Forecast / Applicant types 8 / Description | Private institutions of higher education |
| Forecast / Applicant types 9 / Id | 13 |
| Forecast / Applicant types 9 / Description | Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education |
| Forecast / Applicant types 10 / Id | 06 |
| Forecast / Applicant types 10 / Description | Public and State controlled institutions of higher education |
| Forecast / Applicant types 11 / Id | 23 |
| Forecast / Applicant types 11 / Description | Small businesses |
| Forecast / Applicant types 12 / Id | 00 |
| Forecast / Applicant types 12 / Description | State governments |
| Forecast / Funding instruments 1 / Id | CA |
| Forecast / Funding instruments 1 / Description | Cooperative Agreement |
| Forecast / Funding activity categories 1 / Id | HL |
| Forecast / Funding activity categories 1 / Description | Health |
| Forecast / Posting date str | 2025-12-12-00-00-00 |
| Forecast / Archive date str | 2026-11-25-00-00-00 |
| Forecast / Est synopsis posting date str | 2026-08-26-00-00-00 |
| Forecast / Est application response date str | 2026-10-26-00-00-00 |
| Forecast / Est award date str | 2027-01-15-00-00-00 |
| Forecast / Est project start date str | 2027-09-01-00-00-00 |
| Forecast / Create time stamp str | 2026-08-17-17-14-41 |
| Cfdas 1 / Id | 431594 |
| Cfdas 1 / Opportunity id | 361002 |
| Cfdas 1 / Revision | 2 |
| Cfdas 1 / Cfda number | 93.073 |
| Cfdas 1 / Program title | Birth Defects and Developmental Disabilities – Prevention and Surveillance |
| Synopsis modified fields | Not specified |
| Forecast modified fields | revision; version; opportunityTitle |
Forecast changes
revision
version
sendEmail
archiveDate
modComments
createTimeStamp
| Id | 361002 |
| Revision | 4 |
| Opportunity number | CDC-RFA-DD-26-0222 |
| Opportunity title | Long-term health outcomes of people living with spina bifida |
| Owning agency code | HHS-CDC-NCBDDD |
| Modified comments | This forecast has been modified to update the NOFO title and key dates.
This forecast has been modified to update the NOFO title from Long-term health outcomes of people living with spina bifida based on the National Spina Bifida Patient Registry to Long-term health outcomes of people living with spina bifida. The key dates have been also been updated; The new estimated NOFO publication date is 8/26/26. |
| Opportunity category / Category | D |
| Opportunity category / Description | Discretionary |
| Synopsis / Opportunity id | 361002 |
| Synopsis / Version | 1 |
| Synopsis / Agency code | HHS-CDC-NCBDDD |
| Synopsis / Agency name | Centers for Disease Control – NCBDDD |
| Synopsis / Agency phone | 7704882756 |
| Synopsis / Agency address desc | eut6@cdc.gov |
| Synopsis / Agency details / Code | NCBDDD |
| Synopsis / Agency details / Seed | HHS-CDC-NCBDDD |
| Synopsis / Agency details / Agency name | Centers for Disease Control – NCBDDD |
| Synopsis / Agency details / Agency code | HHS-CDC-NCBDDD |
| Synopsis / Agency details / Top agency code | HHS |
| Synopsis / Top agency details / Code | HHS |
| Synopsis / Top agency details / Seed | HHS |
| Synopsis / Top agency details / Agency name | Department of Health and Human Services |
| Synopsis / Top agency details / Agency code | HHS |
| Synopsis / Top agency details / Top agency code | HHS |
| Synopsis / Agency contact phone | 7704882756 |
| Synopsis / Agency contact name | Centers for Disease Control – NCBDDD |
| Synopsis / Agency contact desc | Stephanie Griswold eut6@cdc.gov |
| Synopsis / Agency contact email | eut6@cdc.gov |
| Synopsis / Agency contact email desc | eut6@cdc.gov |
| Synopsis / Synopsis desc | The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB |
| Synopsis / Response date | Oct 26, 2026 12:00:00 AM EDT |
| Synopsis / Response date desc | Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date. |
| Synopsis / Posting date | Aug 26, 2026 12:00:00 AM EDT |
| Synopsis / Archive date | Nov 25, 2026 12:00:00 AM EST |
| Synopsis / Cost sharing | No |
| Synopsis / Number of awards | 19 |
| Synopsis / Estimated funding | 3000000 |
| Synopsis / Estimated funding formatted | 3,000,000 |
| Synopsis / Award ceiling | 300000 |
| Synopsis / Award ceiling formatted | 300,000 |
| Synopsis / Award floor | 100000 |
| Synopsis / Award floor formatted | 100,000 |
| Synopsis / Create time stamp | Aug 26, 2026 09:57:29 AM EDT |
| Synopsis / Created date | Aug 26, 2026 09:56:47 AM EDT |
| Synopsis / Last updated date | Aug 26, 2026 09:56:47 AM EDT |
| Synopsis / Applicant types 1 / Id | 12 |
| Synopsis / Applicant types 1 / Description | Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education |
| Synopsis / Applicant types 2 / Id | 05 |
| Synopsis / Applicant types 2 / Description | Independent school districts |
| Synopsis / Applicant types 3 / Id | 13 |
| Synopsis / Applicant types 3 / Description | Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education |
| Synopsis / Applicant types 4 / Id | 01 |
| Synopsis / Applicant types 4 / Description | County governments |
| Synopsis / Applicant types 5 / Id | 06 |
| Synopsis / Applicant types 5 / Description | Public and State controlled institutions of higher education |
| Synopsis / Applicant types 6 / Id | 22 |
| Synopsis / Applicant types 6 / Description | For profit organizations other than small businesses |
| Synopsis / Applicant types 7 / Id | 07 |
| Synopsis / Applicant types 7 / Description | Native American tribal governments (Federally recognized) |
| Synopsis / Applicant types 8 / Id | 04 |
| Synopsis / Applicant types 8 / Description | Special district governments |
| Synopsis / Applicant types 9 / Id | 23 |
| Synopsis / Applicant types 9 / Description | Small businesses |
| Synopsis / Applicant types 10 / Id | 00 |
| Synopsis / Applicant types 10 / Description | State governments |
| Synopsis / Applicant types 11 / Id | 02 |
| Synopsis / Applicant types 11 / Description | City or township governments |
| Synopsis / Applicant types 12 / Id | 20 |
| Synopsis / Applicant types 12 / Description | Private institutions of higher education |
| Synopsis / Funding instruments 1 / Id | CA |
| Synopsis / Funding instruments 1 / Description | Cooperative Agreement |
| Synopsis / Funding activity categories 1 / Id | HL |
| Synopsis / Funding activity categories 1 / Description | Health |
| Synopsis / Response date str | 2026-10-26-00-00-00 |
| Synopsis / Posting date str | 2026-08-26-00-00-00 |
| Synopsis / Archive date str | 2026-11-25-00-00-00 |
| Synopsis / Create time stamp str | 2026-08-26-09-57-29 |
| Agency details / Code | NCBDDD |
| Agency details / Seed | HHS-CDC-NCBDDD |
| Agency details / Agency name | Centers for Disease Control – NCBDDD |
| Agency details / Agency code | HHS-CDC-NCBDDD |
| Agency details / Top agency code | HHS |
| Top agency details / Code | HHS |
| Top agency details / Seed | HHS |
| Top agency details / Agency name | Department of Health and Human Services |
| Top agency details / Agency code | HHS |
| Top agency details / Top agency code | HHS |
| Forecast / Opportunity id | 361002 |
| Forecast / Version | 4 |
| Forecast / Posting date | Dec 12, 2025 12:00:00 AM EST |
| Forecast / Archive date | Aug 25, 2026 12:00:00 AM EDT |
| Forecast / Forecast desc | The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB |
| Forecast / Cost sharing | No |
| Forecast / Number of awards | 19 |
| Forecast / Estimated funding | 3000000 |
| Forecast / Award ceiling | 300000 |
| Forecast / Award floor | 100000 |
| Forecast / Agency contact name | Stephanie Griswold |
| Forecast / Agency contact phone | 404-718-2623 |
| Forecast / Agency contact email | eut6@cdc.gov |
| Forecast / Agency contact email desc | eut6@cdc.gov |
| Forecast / Agency code | HHS-CDC-NCBDDD |
| Forecast / Est synopsis posting date | Aug 26, 2026 12:00:00 AM EDT |
| Forecast / Est application response date | Oct 26, 2026 12:00:00 AM EDT |
| Forecast / Est application response date desc | Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date. |
| Forecast / Est award date | Jan 15, 2027 12:00:00 AM EST |
| Forecast / Est project start date | Sep 01, 2027 12:00:00 AM EDT |
| Forecast / Fiscal year | 2026 |
| Forecast / Mod comments | Updated Archive Date |
| Forecast / Create time stamp | Aug 26, 2026 09:57:29 AM EDT |
| Forecast / Created date | Dec 12, 2025 11:31:58 AM EST |
| Forecast / Last updated date | Aug 26, 2026 09:57:29 AM EDT |
| Forecast / Agency details / Code | NCBDDD |
| Forecast / Agency details / Seed | HHS-CDC-NCBDDD |
| Forecast / Agency details / Agency name | Centers for Disease Control – NCBDDD |
| Forecast / Agency details / Agency code | HHS-CDC-NCBDDD |
| Forecast / Agency details / Top agency code | HHS |
| Forecast / Estimated funding formatted | 3,000,000 |
| Forecast / Award ceiling formatted | 300,000 |
| Forecast / Award floor formatted | 100,000 |
| Forecast / Applicant types 1 / Id | 12 |
| Forecast / Applicant types 1 / Description | Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education |
| Forecast / Applicant types 2 / Id | 05 |
| Forecast / Applicant types 2 / Description | Independent school districts |
| Forecast / Applicant types 3 / Id | 13 |
| Forecast / Applicant types 3 / Description | Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education |
| Forecast / Applicant types 4 / Id | 01 |
| Forecast / Applicant types 4 / Description | County governments |
| Forecast / Applicant types 5 / Id | 06 |
| Forecast / Applicant types 5 / Description | Public and State controlled institutions of higher education |
| Forecast / Applicant types 6 / Id | 22 |
| Forecast / Applicant types 6 / Description | For profit organizations other than small businesses |
| Forecast / Applicant types 7 / Id | 07 |
| Forecast / Applicant types 7 / Description | Native American tribal governments (Federally recognized) |
| Forecast / Applicant types 8 / Id | 04 |
| Forecast / Applicant types 8 / Description | Special district governments |
| Forecast / Applicant types 9 / Id | 23 |
| Forecast / Applicant types 9 / Description | Small businesses |
| Forecast / Applicant types 10 / Id | 00 |
| Forecast / Applicant types 10 / Description | State governments |
| Forecast / Applicant types 11 / Id | 02 |
| Forecast / Applicant types 11 / Description | City or township governments |
| Forecast / Applicant types 12 / Id | 20 |
| Forecast / Applicant types 12 / Description | Private institutions of higher education |
| Forecast / Funding instruments 1 / Id | CA |
| Forecast / Funding instruments 1 / Description | Cooperative Agreement |
| Forecast / Funding activity categories 1 / Id | HL |
| Forecast / Funding activity categories 1 / Description | Health |
| Forecast / Posting date str | 2025-12-12-00-00-00 |
| Forecast / Archive date str | 2026-08-25-00-00-00 |
| Forecast / Est synopsis posting date str | 2026-08-26-00-00-00 |
| Forecast / Est application response date str | 2026-10-26-00-00-00 |
| Forecast / Est award date str | 2027-01-15-00-00-00 |
| Forecast / Est project start date str | 2027-09-01-00-00-00 |
| Forecast / Create time stamp str | 2026-08-26-09-57-29 |
| Synopsis attachment folders 1 / Id | 81179 |
| Synopsis attachment folders 1 / Opportunity id | 361002 |
| Synopsis attachment folders 1 / Folder type | Full Announcement |
| Synopsis attachment folders 1 / Folder name | Full Announcement |
| Synopsis attachment folders 1 / Zip lob size | 276312 |
| Synopsis attachment folders 1 / Created date | Aug 26, 2026 09:57:28 AM EDT |
| Synopsis attachment folders 1 / Last updated date | Aug 26, 2026 09:57:29 AM EDT |
| Synopsis attachment folders 1 / Synopsis attachments 1 / Id | 354798 |
| Synopsis attachment folders 1 / Synopsis attachments 1 / Opportunity id | 361002 |
| Synopsis attachment folders 1 / Synopsis attachments 1 / Mime type | application/pdf |
| Synopsis attachment folders 1 / Synopsis attachments 1 / File name | cdc-rfa-dd-26-0222_forPublication.pdf |
| Synopsis attachment folders 1 / Synopsis attachments 1 / File description | cdc-rfa-dd-26-0222_forPublication.pdf |
| Synopsis attachment folders 1 / Synopsis attachments 1 / File lob size | 311483 |
| Synopsis attachment folders 1 / Synopsis attachments 1 / Created date | Aug 26, 2026 09:57:29 AM EDT |
| Synopsis attachment folders 1 / Synopsis attachments 1 / Synopsis att folder id | 81179 |
| Synopsis document urls | Not specified |
| Syn att change comments | Not specified |
| Cfdas 1 / Id | 431594 |
| Cfdas 1 / Opportunity id | 361002 |
| Cfdas 1 / Cfda number | 93.073 |
| Cfdas 1 / Program title | Birth Defects and Developmental Disabilities – Prevention and Surveillance |
| Opportunity pkgs 1 / Id | 294061 |
| Opportunity pkgs 1 / Topportunity id | 361002 |
| Opportunity pkgs 1 / Family id | 15 |
| Opportunity pkgs 1 / Dialect | XFDL2.2 |
| Opportunity pkgs 1 / Opportunity number | CDC-RFA-DD-26-0222 |
| Opportunity pkgs 1 / Opportunity title | Long-term health outcomes of people living with spina bifida |
| Opportunity pkgs 1 / Cfda number | 93.073 |
| Opportunity pkgs 1 / Opening date | 2026-08-26 |
| Opportunity pkgs 1 / Closing date | 2026-10-26 |
| Opportunity pkgs 1 / Owning agency code | HHS-CDC-NCBDDD |
| Opportunity pkgs 1 / Agency details / Code | NCBDDD |
| Opportunity pkgs 1 / Agency details / Seed | HHS-CDC-NCBDDD |
| Opportunity pkgs 1 / Agency details / Agency name | Centers for Disease Control – NCBDDD |
| Opportunity pkgs 1 / Agency details / Agency code | HHS-CDC-NCBDDD |
| Opportunity pkgs 1 / Agency details / Top agency code | HHS |
| Opportunity pkgs 1 / Top agency details / Code | HHS |
| Opportunity pkgs 1 / Top agency details / Seed | HHS |
| Opportunity pkgs 1 / Top agency details / Agency name | Department of Health and Human Services |
| Opportunity pkgs 1 / Top agency details / Agency code | HHS |
| Opportunity pkgs 1 / Top agency details / Top agency code | HHS |
| Opportunity pkgs 1 / Program title | Birth Defects and Developmental Disabilities – Prevention and Surveillance |
| Opportunity pkgs 1 / Contact info | Stephanie Griswold |
| Opportunity pkgs 1 / Grace period | 0 |
| Opportunity pkgs 1 / Competition id | CDC-RFA-DD-26-0222 |
| Opportunity pkgs 1 / Competition title | Long-term health outcomes of people living with spina bifida |
| Opportunity pkgs 1 / Electronic required | Y |
| Opportunity pkgs 1 / Expected application count | 19 |
| Opportunity pkgs 1 / Expected application size | 200 |
| Opportunity pkgs 1 / Open to applicant type | 1 |
| Opportunity pkgs 1 / Is multi project | N |
| Opportunity pkgs 1 / Extension | |
| Opportunity pkgs 1 / Mimetype | application/pdf |
| Opportunity pkgs 1 / Last update | Aug 26, 2026 09:57:16 AM EDT |
| Opportunity pkgs 1 / Workspace compatible flag | Y |
| Opportunity pkgs 1 / Package id | PKG00294061 |
| Opportunity pkgs 1 / Opening date str | 2026-08-26-00-00-00 |
| Opportunity pkgs 1 / Closing date str | 2026-10-26-00-00-00 |
| Closed opportunity pkgs | Not specified |
| Original due date | Oct 26, 2026 12:00:00 AM EDT |
| Original due date desc | Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date. |
| Synopsis modified fields | Not specified |
| Forecast modified fields | revision; version; sendEmail; archiveDate; modComments; createTimeStamp |
| Error messages | Not specified |
| Syn post date in past | Yes |
| Doc type | synopsis |
| Forecast hist count | 3 |
| Synopsis hist count | 0 |
| Assist compatible | No |
| Assist url | Not specified |
| Related opps | Not specified |
| Ost | POSTED |
Related Documents
There are no related documents on this grant.
Packages
| Agency Contact Information: | Stephanie Griswold eut6@cdc.gov |
| Assistance Listing Number | Competition ID | Competition Title | Opportunity Package ID | Opening Date | Closing Date | Actions |
|---|---|---|---|---|---|---|
| 93.073 | CDC-RFA-DD-26-0222 | Long-term health outcomes of people living with spina bifida | PKG00294061 | 2026-08-26 | 2026-10-26 | View |
Package 1
Instructions
cdc-rfa-dd-26-0222_forPublication.pdf
Mandatory forms
SF424_4_0-V4.0.pdf
Project_AbstractSummary_2_0-V2.0.pdf
SFLLL_2_0-V2.0.pdf
SF424A-V1.0.pdf
BudgetNarrativeAttachments_1_2-V1.2.pdf
ProjectNarrativeAttachments_1_2-V1.2.pdf
Optional forms
OtherNarrativeAttachments_1_2-V1.2.pdf
